Literature DB >> 15933277

Measuring the values and preferences for everyday care of persons with cognitive impairment and their family caregivers.

Carol J Whitlatch1, Lynn Friss Feinberg, Shandra S Tucke.   

Abstract

PURPOSE: This study describes the development and psychometric properties of a 24-item scale to be used in both research and practice settings that assesses the everyday care values and preferences of individuals with cognitive impairment and the perceptions of family caregivers about their relative's values and preferences for care. DESIGN AND METHODS: The Values and Preferences Scale was developed on the basis of previous measures used with cognitively intact samples with additional items generated by the authors in consultation with an advisory committee of practitioners, researchers, family caregivers, and persons with cognitive impairment. Individuals with mild to moderate cognitive impairment and their family caregivers (n = 111) were interviewed for the study.
RESULTS: Results of a factor analysis determined that the Values and Preferences Scale can be divided into two domains or subscales for persons with cognitive impairment and their family caregivers (i.e., Environment-Social Network and Personal Autonomy). These domains were found to have good internal consistency for both the individuals and their caregivers (Cronbach's alphas ranged from.70 to.82). Evidence of their psychometric properties compared with measures of depression, quality of life, and involvement in decision making was also found. IMPLICATIONS: These findings suggest that persons with cognitive impairment are able to express values and preferences about care they currently receive or will need in the future. Further application and testing of the Values and Preferences Scale should prove useful to practitioners who assist those with cognitive impairment and their caregivers with daily care decisions and the development of care plans.

Entities:  

Mesh:

Year:  2005        PMID: 15933277     DOI: 10.1093/geront/45.3.370

Source DB:  PubMed          Journal:  Gerontologist        ISSN: 0016-9013


  30 in total

1.  Understanding discrepancy in perceptions of values: individuals with mild to moderate dementia and their family caregivers.

Authors:  Allison M Reamy; Kyungmin Kim; Steven H Zarit; Carol J Whitlatch
Journal:  Gerontologist       Date:  2011-03-07

2.  Stress process model for individuals with dementia.

Authors:  Katherine S Judge; Heather L Menne; Carol J Whitlatch
Journal:  Gerontologist       Date:  2009-12-18

3.  "It Depends": Reasons Why Nursing Home Residents Change Their Minds About Care Preferences.

Authors:  Allison R Heid; Karen Eshraghi; Christina I Duntzee; Katherine Abbott; Kimberly Curyto; Kimberly Van Haitsma
Journal:  Gerontologist       Date:  2014-05-09

4.  Do Family Proxies Get It Right? Concordance in Reports of Nursing Home Residents' Everyday Preferences.

Authors:  Allison R Heid; Lauren R Bangerter; Katherine M Abbott; Kimberly Van Haitsma
Journal:  J Appl Gerontol       Date:  2015-04-28

5.  Purpose in Life Among Family Care Partners Managing Dementia: Links to Caregiving Gains.

Authors:  Courtney A Polenick; Carey Wexler Sherman; Kira S Birditt; Steven H Zarit; Helen C Kales
Journal:  Gerontologist       Date:  2019-09-17

6.  Values and preferences of individuals with dementia: perceptions of family caregivers over time.

Authors:  Allison M Reamy; Kyungmin Kim; Steven H Zarit; Carol J Whitlatch
Journal:  Gerontologist       Date:  2012-08-16

7.  Care Values in Dementia: Patterns of Perception and Incongruence Among Family Care Dyads.

Authors:  Lyndsey M Miller; Carol J Whitlatch; Christopher S Lee; Michael S Caserta
Journal:  Gerontologist       Date:  2019-05-17

8.  The Change in Nursing Home Residents' Preferences Over Time.

Authors:  Katherine M Abbott; Allison R Heid; Morton Kleban; Michael J Rovine; Kimberly Van Haitsma
Journal:  J Am Med Dir Assoc       Date:  2018-10-01       Impact factor: 4.669

9.  Caregiving spouses' attachment orientations and the physical and psychological health of individuals with Alzheimer's disease.

Authors:  Joan K Monin; Richard Schulz; Trace S Kershaw
Journal:  Aging Ment Health       Date:  2012-12-07       Impact factor: 3.658

10.  Beliefs and attitudes of older adults and carers about deprescribing of medications: a qualitative focus group study.

Authors:  Emily Reeve; Lee-Fay Low; Sarah N Hilmer
Journal:  Br J Gen Pract       Date:  2016-06-06       Impact factor: 5.386

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