Literature DB >> 15869116

Disability identity and attitudes toward cure in a sample of disabled activists.

Harlan D Hahn1, Todd L Belt.   

Abstract

This study investigates the assumption that disabled people want improvements in their functional abilities, or complete cures. Contrary to this assumption, many disabled activists are found to have attitudes in which they refuse treatment that promises a cure. In order to explain this attitude, different sources of disability identity are isolated as potential predictor variables. A multivariate model reveals that self-identity related to a personal affirmation of disability is a significant predictor of refusal of treatment, as is the age of onset of disability. Implications for interactions with medical professionals and utility-based modeling of medical treatment seeking are discussed.

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Mesh:

Year:  2004        PMID: 15869116     DOI: 10.1177/002214650404500407

Source DB:  PubMed          Journal:  J Health Soc Behav        ISSN: 0022-1465


  7 in total

Review 1.  Is the search for cerebral palsy 'cures' a reasonable and appropriate goal in the 2020s?

Authors:  Ingrid Honan; Megan Finch-Edmondson; Christine Imms; Iona Novak; Amy Hogan; Shannon Clough; Bruce Bonyhady; Sarah McIntyre; Catherine Elliott; Shirley Wong; Michael Bink; Nadia Badawi
Journal:  Dev Med Child Neurol       Date:  2021-08-17       Impact factor: 4.864

2.  Initial factor exploration of disability identity.

Authors:  Anjali J Forber-Pratt; Gabriel J Merrin; Carlyn O Mueller; Larry R Price; Heather Hensman Kettrey
Journal:  Rehabil Psychol       Date:  2020-01-16

3.  The role of experiential knowledge within attitudes towards genetic carrier screening: A comparison of people with and without experience of spinal muscular atrophy.

Authors:  Felicity K Boardman; Philip J Young; Oliver Warren; Frances E Griffiths
Journal:  Health Expect       Date:  2017-07-13       Impact factor: 3.377

4.  Impairment Experiences, Identity and Attitudes Towards Genetic Screening: the Views of People with Spinal Muscular Atrophy.

Authors:  Felicity K Boardman; Philip J Young; Frances E Griffiths
Journal:  J Genet Couns       Date:  2017-06-30       Impact factor: 2.537

5.  Attitudes of people with inherited retinal conditions toward gene editing technology.

Authors:  Lily Hoffman-Andrews; Ronit Mazzoni; Michelle Pacione; Rosemarie Garland-Thomson; Kelly E Ormond
Journal:  Mol Genet Genomic Med       Date:  2019-06-12       Impact factor: 2.183

6.  Letter to the editor. Gene editing and disabled people: a response to Iñigo de Miguel Beriain.

Authors:  Felicity Boardman
Journal:  J Community Genet       Date:  2020-04-30

7.  Age at disability onset and self-reported health status.

Authors:  Eric W Jamoom; Willi Horner-Johnson; Rie Suzuki; Elena M Andresen; Vincent A Campbell
Journal:  BMC Public Health       Date:  2008-01-09       Impact factor: 3.295

  7 in total

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