Literature DB >> 15868349

[The Heidelberg instrument for the assessment of quality of life in dementia (H. I. L. DE.)--dimensions of quality of life and methods of organization].

S Becker1, A Kruse, J Schröder, U Seidl.   

Abstract

The contribution is intended to describe the theoretical background and measurement approach of H.I.L.DE., a research project aimed to develop and validate a comprehensive assessment of quality of life in nursing home residents suffering from dementia. Proceeding from the assumption that emotions are felt even in advanced stages of dementia and can be interpreted on the basis of peoples' mimic expressions, three samples of participants were recruited from 11 nursing homes of varying maintenance: 121 nursing home residents suffering from dementia, 97 professional caregivers and 101 relatives participated in the first wave of this study. Operational definition of quality of life in H.I.L.DE. proceeds from the differentiation of eight dimensions of quality of life: physical environment, social environment, quality of care, behavioral competence, medical and functional status, cognitive status, psychopathology and behavior disturbances, and subjective experiences of physical and social environment and emotional well-being. Measures of the eight dimensions involve data from medical examination, interviews with residents, professional caregivers and relatives, ecopsychological assessment of physical environment and analysis of care documents. First results from the H.I.L.DE.-study are used as an illustration of the potentials of such a comprehensive approach to the measurement of quality of life.

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Year:  2005        PMID: 15868349     DOI: 10.1007/s00391-005-0297-7

Source DB:  PubMed          Journal:  Z Gerontol Geriatr        ISSN: 0948-6704            Impact factor:   1.281


  15 in total

1.  Neuropsychological correlates of apathy and depression in patients with dementia.

Authors:  G Kuzis; L Sabe; C Tiberti; F Dorrego; S E Starkstein
Journal:  Neurology       Date:  1999-04-22       Impact factor: 9.910

2.  Reliability and validity of the Apathy Evaluation Scale.

Authors:  R S Marin; R C Biedrzycki; S Firinciogullari
Journal:  Psychiatry Res       Date:  1991-08       Impact factor: 3.222

3.  Syndromic validity of apathy in Alzheimer's disease.

Authors:  S E Starkstein; G Petracca; E Chemerinski; J Kremer
Journal:  Am J Psychiatry       Date:  2001-06       Impact factor: 18.112

4.  Executive dysfunction and apathy predict functional impairment in Alzheimer disease.

Authors:  Patricia A Boyle; Paul F Malloy; Stephen Salloway; Deborah A Cahn-Weiner; Ronald Cohen; Jeffrey L Cummings
Journal:  Am J Geriatr Psychiatry       Date:  2003 Mar-Apr       Impact factor: 4.105

5.  Apathy and executive dysfunction in mild cognitive impairment and Alzheimer disease.

Authors:  Rebecca E Ready; Brian R Ott; Janet Grace; Deborah A Cahn-Weiner
Journal:  Am J Geriatr Psychiatry       Date:  2003 Mar-Apr       Impact factor: 4.105

6.  [Situations of emotional significance in residents suffering from dementia].

Authors:  M Bär; A Kruse; S Re
Journal:  Z Gerontol Geriatr       Date:  2003-12       Impact factor: 1.281

7.  Apathy is not depression.

Authors:  M L Levy; J L Cummings; L A Fairbanks; D Masterman; B L Miller; A H Craig; J S Paulsen; I Litvan
Journal:  J Neuropsychiatry Clin Neurosci       Date:  1998       Impact factor: 2.198

8.  Factors associated with suboptimal analgesic use in community-dwelling elderly.

Authors:  J T Hanlon; G G Fillenbaum; S A Studenski; T Ziqubu-Page; W E Wall
Journal:  Ann Pharmacother       Date:  1996 Jul-Aug       Impact factor: 3.154

9.  The Neuropsychiatric Inventory: comprehensive assessment of psychopathology in dementia.

Authors:  J L Cummings; M Mega; K Gray; S Rosenberg-Thompson; D A Carusi; J Gornbein
Journal:  Neurology       Date:  1994-12       Impact factor: 9.910

10.  Pain in cognitively impaired nursing home patients.

Authors:  B A Ferrell; B R Ferrell; L Rivera
Journal:  J Pain Symptom Manage       Date:  1995-11       Impact factor: 3.612

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  11 in total

1.  [Independence, consciously accepted dependency, self-responsibility and shared responsibility as key categories of an ethical analysis of old age].

Authors:  A Kruse
Journal:  Z Gerontol Geriatr       Date:  2005-08       Impact factor: 1.281

2.  [Persons with dementia in individual everyday situations. First results of an intervention study].

Authors:  M Bär; M Böggemann; R Kaspar; S Re; C Berendonk; U Seidl; A Kruse; J Schröder
Journal:  Z Gerontol Geriatr       Date:  2006-06       Impact factor: 1.281

3.  Quality of life in nursing homes following the group-living principle: a pilot study measuring the quality of life from the subjective perspective of dependent-living elderly.

Authors:  A Simon; M Berwig; S Heinrich
Journal:  Z Gerontol Geriatr       Date:  2013-08       Impact factor: 1.281

Review 4.  [Conceptual and legal variations between the treatment of people with dementia receiving inpatient and ambulatory care].

Authors:  T Klie; T Pfundstein; L Eitenbichler; M Szymczak; M Strauch
Journal:  Z Gerontol Geriatr       Date:  2005-04       Impact factor: 1.281

5.  [The impact of different reference groups for the assessment of quality of life in people suffering from dementia-determination of competence groups with HILDE].

Authors:  S Becker; R Kaspar; A Kruse
Journal:  Z Gerontol Geriatr       Date:  2006-10       Impact factor: 1.281

6.  [Assessment of pain in advanced dementia. Construct validity of the German PAINAD].

Authors:  H D Basler; D Hüger; R Kunz; J Luckmann; A Lukas; T Nikolaus; M S Schuler
Journal:  Schmerz       Date:  2006-11       Impact factor: 1.107

7.  [Research with participants suffering from dementia. Ethical and legal considerations in research involving human subjects].

Authors:  N Schüßler; M W Schnell
Journal:  Z Gerontol Geriatr       Date:  2014-12       Impact factor: 1.281

Review 8.  [Critical observations on measuring quality of life of persons suffering from dementia].

Authors:  H-J Gertz; M Berwig
Journal:  Nervenarzt       Date:  2008-09       Impact factor: 1.214

Review 9.  [Patient view in the assessment of quality of life in old age: potentials and limits].

Authors:  M Holzhausen; U Bornschlegel; T Fischer
Journal:  Z Gerontol Geriatr       Date:  2009-06-20       Impact factor: 1.281

10.  Scalability and internal consistency of the German version of the dementia-specific quality of life instrument QUALIDEM in nursing homes - a secondary data analysis.

Authors:  Martin Nikolaus Dichter; Olga Dortmann; Margareta Halek; Gabriele Meyer; Daniela Holle; Johanna Nordheim; Sabine Bartholomeyczik
Journal:  Health Qual Life Outcomes       Date:  2013-06-05       Impact factor: 3.186

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