Literature DB >> 15857873

The fight for 'health-related normality': a qualitative study of the experiences of individuals living with established inflammatory bowel disease (ibd).

Nicola J Hall1, Gregory P Rubin, Audrey Dougall, A P S Hungin, Joanne Neely.   

Abstract

This article reports on the experiences of individuals living with IBD and identifies a range of coping strategies used by them. Qualitative data from 15 individual interviews and three focus groups were analysed using a grounded theory approach. The main focus is on the emergent core concept of 'health-related normality'. A theoretical framework is proposed to explain how individuals with IBD assess their health-related normality, their fight to maintain it and their need to retain the appearance of normality to others. It is concluded that individuals maintain their health-related normality along certain time and context sensitive continuums rather than fitting into a distinct typology.

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Year:  2005        PMID: 15857873     DOI: 10.1177/1359105305051433

Source DB:  PubMed          Journal:  J Health Psychol        ISSN: 1359-1053


  26 in total

1.  The burden of inflammatory bowel disease: a patient-reported qualitative analysis and development of a conceptual model.

Authors:  Jennifer Devlen; Kathleen Beusterien; Linnette Yen; Awais Ahmed; Adam S Cheifetz; Alan C Moss
Journal:  Inflamm Bowel Dis       Date:  2014-03       Impact factor: 5.325

2.  Normalization as a Strategy for Maintaining Quality of Life While Coping with Infertility in a Pronatalist Culture.

Authors:  Yael Benyamini; Miri Gozlan; Ariel Weissman
Journal:  Int J Behav Med       Date:  2017-12

3.  Faecal incontinence and health related quality of life in inflammatory bowel disease patients: Findings from a tertiary care center in South Asia.

Authors:  Duminda Subasinghe; Navarathna Mudiyanselage Meththananda Navarathna; Dharmabandhu Nandadeva Samarasekera
Journal:  World J Gastrointest Pharmacol Ther       Date:  2016-08-06

4.  Pharmacy-led switches of 5-ASA: impact on secondary care.

Authors:  Chris J Healey; John O'Malley
Journal:  Frontline Gastroenterol       Date:  2012-11-12

5.  Symptom clusters in adults with inflammatory bowel disease.

Authors:  Samantha Conley; Deborah D Proctor; Sangchoon Jeon; Robert S Sandler; Nancy S Redeker
Journal:  Res Nurs Health       Date:  2017-08-17       Impact factor: 2.228

6.  An evaluation study of a pilot group education programme for inflammatory bowel disease.

Authors:  Mark Sephton; Karen Kemp; Victoria Ridgway
Journal:  Frontline Gastroenterol       Date:  2015-10-23

7.  "A gift wrapped in barbed wire" positive and negative life changes after being diagnosed with inflammatory bowel disease.

Authors:  Rebecca Purc-Stephenson; Desirae Bowlby; S T Qaqish
Journal:  Qual Life Res       Date:  2014-10-31       Impact factor: 4.147

8.  Beyond standard quality of life measures: the subjective experiences of living with inflammatory bowel disease.

Authors:  Barat J Wolfe; Fuschia M Sirois
Journal:  Qual Life Res       Date:  2008-06-03       Impact factor: 4.147

Review 9.  Practical strategies for enhancing adherence to treatment regimen in inflammatory bowel disease.

Authors:  Rachel N Greenley; Jennifer H Kunz; Jennifer Walter; Kevin A Hommel
Journal:  Inflamm Bowel Dis       Date:  2013-06       Impact factor: 5.325

Review 10.  Understanding the health and social care needs of people living with IBD: a meta-synthesis of the evidence.

Authors:  Karen Kemp; Jane Griffiths; Karina Lovell
Journal:  World J Gastroenterol       Date:  2012-11-21       Impact factor: 5.742

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