Literature DB >> 15819660

Beyond tokenistic involvement of older people in research - a framework for future development and understanding.

Belinda Jane Dewar1.   

Abstract

Research and development work in health and social care are increasingly required to involve users at all stages of the research process yet there is scant empirical evidence to support the justification of this laudable aim. Evidence does suggest that at present efforts to achieve this are primarily tokenistic and that more work is needed, both to examine what user involvement in research activity actually means, and how this can best be supported. This paper sets out to describe developments to support involvement of older people through work at the Royal Bank of Scotland Centre for the Older Person's Agenda and to identify a number of challenges that this has raised for researchers. These challenges have arisen out of a number of assumptions that underpin the process of user involvement. The paper discusses some of the benefits of working in partnership with older people and identifies strategic issues for consideration in order to promote future partnership working.

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Year:  2005        PMID: 15819660     DOI: 10.1111/j.1365-2702.2005.01162.x

Source DB:  PubMed          Journal:  J Clin Nurs        ISSN: 0962-1067            Impact factor:   3.036


  17 in total

1.  User involvement in the development of a research bid: barriers, enablers and impacts.

Authors:  Sophie Staniszewska; Nicola Jones; Mary Newburn; Shanit Marshall
Journal:  Health Expect       Date:  2007-06       Impact factor: 3.377

2.  What is involvement in research and what does it achieve? Reflections on a pilot study of the personal costs of stroke.

Authors:  Christopher McKevitt; Nina Fudge; Charles Wolfe
Journal:  Health Expect       Date:  2009-08-19       Impact factor: 3.377

3.  User involvement in long-term care. Towards a relational care-ethics approach.

Authors:  Tineke A Abma; Vivianne E Baur
Journal:  Health Expect       Date:  2014-04-28       Impact factor: 3.377

Review 4.  'The missing links': understanding how context and mechanism influence the impact of public involvement in research.

Authors:  Kristina Staley; Sarah A Buckland; Helen Hayes; Maryrose Tarpey
Journal:  Health Expect       Date:  2012-10-29       Impact factor: 3.377

5.  Wise owls and professors: the role of older researchers in the review of the National Service Framework for Older People.

Authors:  Michelle Cornes; John Peardon; Jill Manthorpe
Journal:  Health Expect       Date:  2008-12       Impact factor: 3.377

Review 6.  A systematic review of the impact of patient and public involvement on service users, researchers and communities.

Authors:  Jo Brett; Sophie Staniszewska; Carole Mockford; Sandra Herron-Marx; John Hughes; Colin Tysall; Rashida Suleman
Journal:  Patient       Date:  2014       Impact factor: 3.883

7.  Seeking connections, creating movement: the power of altruistic action.

Authors:  Tineke A Abma; Vivianne Baur
Journal:  Health Care Anal       Date:  2014-12

Review 8.  Patient and service user engagement in research: a systematic review and synthesized framework.

Authors:  Nathan D Shippee; Juan Pablo Domecq Garces; Gabriela J Prutsky Lopez; Zhen Wang; Tarig A Elraiyah; Mohammed Nabhan; Juan P Brito; Kasey Boehmer; Rim Hasan; Belal Firwana; Patricia J Erwin; Victor M Montori; M Hassan Murad
Journal:  Health Expect       Date:  2013-06-03       Impact factor: 3.377

9.  Involving older people in research: practical considerations when using the authenticity criteria in constructivist inquiry.

Authors:  Christine Brown Wilson; Philip Clissett
Journal:  J Adv Nurs       Date:  2010-11-15       Impact factor: 3.187

Review 10.  Older care-home residents as collaborators or advisors in research: a systematic review.

Authors:  Tamara Backhouse; Andrea Kenkmann; Kathleen Lane; Bridget Penhale; Fiona Poland; Anne Killett
Journal:  Age Ageing       Date:  2016-01-19       Impact factor: 10.668

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