Literature DB >> 15797160

Using expert patients' narratives as an educational resource.

Teresa L Swift1, Paul A Dieppe.   

Abstract

In this article, we examine the topic of patient participation in health care and report on how we have drawn on the concept of patient expertise to produce a new kind of information booklet for chronic arthritis patients. The booklet is patient-generated and contains the illness narratives of patients with three kinds of arthritis. The booklet draws upon the knowledge of patients who feel they are flourishing despite their condition. By communicating information through the powerful medium of narrative it is hoped the booklet will be a useful educational and supportive resource for other patients with a similar condition. We would encourage health professionals to acknowledge patient expertise and to consider the expertise of certain patients as a valuable educational resource both for themselves and for other patients.

Entities:  

Mesh:

Year:  2005        PMID: 15797160     DOI: 10.1016/j.pec.2004.05.004

Source DB:  PubMed          Journal:  Patient Educ Couns        ISSN: 0738-3991


  8 in total

1.  Considering 'balance' in information.

Authors:  Vikki Entwistle
Journal:  Health Expect       Date:  2007-12       Impact factor: 3.377

Review 2.  A plea for a more epidemiological and patient-oriented pharmacovigilance.

Authors:  Veronica Scurti; Marilena Romero; Gianni Tognoni
Journal:  Eur J Clin Pharmacol       Date:  2011-07-20       Impact factor: 2.953

3.  Employment and quality of survivorship among women with cancer: domains not captured by quality of life instruments.

Authors:  Linda M Frazier; Virginia A Miller; Douglas V Horbelt; James E Delmore; Brigitte E Miller; Ellen P Averett
Journal:  Cancer Control       Date:  2009-01       Impact factor: 3.302

4.  ReGAE 5: Can we improve the surgical journey for African-Caribbean patients undergoing glaucoma filtration surgery? Some preliminary findings.

Authors:  Vinette Cross; Peter Shah; Martin Glynn; Shivani Chidrawar
Journal:  Clin Ophthalmol       Date:  2009-06-02

5.  Managing the personal side of health: how patient expertise differs from the expertise of clinicians.

Authors:  Andrea Hartzler; Wanda Pratt
Journal:  J Med Internet Res       Date:  2011-08-16       Impact factor: 5.428

6.  Closing the loop in person-centered care: patient experiences of a chronic kidney disease self-management intervention.

Authors:  Kathryn Havas; Clint Douglas; Ann Bonner
Journal:  Patient Prefer Adherence       Date:  2017-11-29       Impact factor: 2.711

7.  Characteristics of mental health recovery narratives: Systematic review and narrative synthesis.

Authors:  Joy Llewellyn-Beardsley; Stefan Rennick-Egglestone; Felicity Callard; Paul Crawford; Marianne Farkas; Ada Hui; David Manley; Rose McGranahan; Kristian Pollock; Amy Ramsay; Knut Tore Sælør; Nicola Wright; Mike Slade
Journal:  PLoS One       Date:  2019-03-28       Impact factor: 3.240

8.  User involvement as sharing knowledge - an extended perspective in patient education.

Authors:  Anita Strøm; May Solveig Fagermoen
Journal:  J Multidiscip Healthc       Date:  2014-12-01
  8 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.