Literature DB >> 15764444

Uncertainty management following a positive newborn screening for cystic fibrosis.

James Price Dillard1, Christine L Carson.   

Abstract

As advances are made in understanding the human genome, newborn screening for a variety of different diseases becomes more prevalent. Although this screening can provide a number of benefits, it also may be associated with various negative psychosocial consequences, including heightened uncertainty and anxiety about the child's health. Relying on videotaped interactions between health care providers and families whose child received a positive newborn screening test for cystic fibrosis (CF; N = 17), in this article we report on how the respective parties manage uncertainty. Although the goal of the providers appears to be one of reducing uncertainty, all parties to the interaction engage in behaviors that both manage and negotiate as opposed to just reduce uncertainty. Implications for theorizing about uncertainty management are discussed.

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Year:  2005        PMID: 15764444     DOI: 10.1080/10810730590904580

Source DB:  PubMed          Journal:  J Health Commun        ISSN: 1081-0730


  5 in total

1.  Using communication to manage uncertainty about cervical cancer screening guideline adherence among Appalachian women.

Authors:  Elisia L Cohen; Allison Scott Gordon; Rachael Record; Sara Shaunfield; Grace M Jones; Tom Collins
Journal:  J Appl Commun Res       Date:  2016-02-18

2.  Information and Emotional Support Needs of Families Whose Infant Was Diagnosed With SCID Through Newborn Screening.

Authors:  Melissa Raspa; Molly Lynch; Linda Squiers; Angela Gwaltney; Katherine Porter; Holly Peay; Alissa Huston; Brian Fitzek; John G Boyle
Journal:  Front Immunol       Date:  2020-05-06       Impact factor: 7.561

Review 3.  Absorbing it all: A meta-ethnography of parents' unfolding experiences of newborn screening.

Authors:  Ashley L White; Felicity Boardman; Abigail McNiven; Louise Locock; Lisa Hinton
Journal:  Soc Sci Med       Date:  2021-09-03       Impact factor: 4.634

Review 4.  Receiving results of uncertain clinical relevance from population genetic screening: systematic review & meta-synthesis of qualitative research.

Authors:  Faye Johnson; Fiona Ulph; Rhona MacLeod; Kevin W Southern
Journal:  Eur J Hum Genet       Date:  2022-03-08       Impact factor: 5.351

5.  Parental experiences of uncertainty following an abnormal fetal anomaly scan: Insights using Han's taxonomy of uncertainty.

Authors:  Jennifer Hammond; Jasmijn E Klapwijk; Melissa Hill; Stina Lou; Kelly E Ormond; Karin E M Diderich; Sam Riedijk; Celine Lewis
Journal:  J Genet Couns       Date:  2020-07-07       Impact factor: 2.717

  5 in total

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