Literature DB >> 15748680

Participatory action research: considerations for ethical review.

N Khanlou1, E Peter.   

Abstract

This paper addresses the distinctive nature of participatory action research (PAR) in relation to ethical review requirements. As a framework for conducting research and reducing health disparities, PAR is gaining increased attention in community and public health research. As a result, PAR researchers and members of Research Ethics Boards could benefit from an increased understanding of the array of ethical concerns that can arise. We discuss these concerns in light of commonly held ethical requirements for clinical research (social or scientific value, scientific validity, fair subject/participant selection, favourable risk-benefit ratio, independent review, informed consent, and respect for potential and enrolled participants) and refer to guidelines specifically developed for participatory research in health promotion. We draw from our community-based experiences in mental health promotion research with immigrant and culturally diverse youth to illustrate the ethical advantages and challenges of applying a PAR approach. We conclude with process suggestions for Research Ethics Boards.

Entities:  

Keywords:  Biomedical and Behavioral Research; Mental Health Therapies

Mesh:

Year:  2004        PMID: 15748680     DOI: 10.1016/j.socscimed.2004.10.004

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  35 in total

Review 1.  Opportunities and challenges associated with engaging immigrant women in participatory action research.

Authors:  Rebecca Ganann
Journal:  J Immigr Minor Health       Date:  2013-04

2.  Culturally Safe Epidemiology: Oxymoron or Scientific Imperative.

Authors:  Mary Cameron; Neil Andersson; Ian McDowell; Robert J Ledogar
Journal:  Pimatisiwin       Date:  2010

3.  Research with groups: group rights, group consent, and collaborative research commentary on "Protecting the Navajo People through tribal regulation of research".

Authors:  Brian Schrag
Journal:  Sci Eng Ethics       Date:  2006-07       Impact factor: 3.525

4.  "It's like Tuskegee in reverse": a case study of ethical tensions in institutional review board review of community-based participatory research.

Authors:  Ruth E Malone; Valerie B Yerger; Carol McGruder; Erika Froelicher
Journal:  Am J Public Health       Date:  2006-10-03       Impact factor: 9.308

5.  Ethical dilemmas in community-based participatory research: recommendations for institutional review boards.

Authors:  Sarah Flicker; Robb Travers; Adrian Guta; Sean McDonald; Aileen Meagher
Journal:  J Urban Health       Date:  2007-07       Impact factor: 3.671

6.  Post-migratory experiences of newcomer female youth: self-esteem and identity development.

Authors:  Nazilla Khanlou; Charmaine Crawford
Journal:  J Immigr Minor Health       Date:  2006-01

7.  The heroines of their own stories: Insights from the use of life history drawings in research with a transnational migrant community.

Authors:  Jennifer S Hirsch; Morgan M Philbin
Journal:  Glob Public Health       Date:  2016-04-24

8.  Using participatory approaches with older people in a residential home in Guyana: challenges and tensions.

Authors:  Gillian Hewitt; Alizon K Draper; Suraiya Ismail
Journal:  J Cross Cult Gerontol       Date:  2013-03

9.  Ethics and Science in the Participatory Era: A Vignette-Based Delphi Study.

Authors:  Elizabeth Bromley; Lisa Mikesell; Dmitry Khodyakov
Journal:  J Empir Res Hum Res Ethics       Date:  2017-07-10       Impact factor: 1.742

10.  Participant observation of time allocation, direct patient contact and simultaneous activities in hospital physicians.

Authors:  Matthias Weigl; Andreas Müller; Andrea Zupanc; Peter Angerer
Journal:  BMC Health Serv Res       Date:  2009-06-29       Impact factor: 2.655

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