Literature DB >> 15679507

Health-related quality of life and self-perceived competence of children assessed before and up to two years after epilepsy surgery.

Ron van Empelen1, Aag Jennekens-Schinkel, Peter C van Rijen, Paul J M Helders, Onno van Nieuwenhuizen.   

Abstract

PURPOSE: To measure outcome of epilepsy surgery in terms of health-related quality of life (HrQoL) and self-perceived competence of children and adolescents.
METHODS: Prospective longitudinal follow-up study of 21 patients (aged 6.2 to 16.8 years). Frequency and severity of seizures and epilepsy-related restrictions, HrQoL, and self-perceived competence were rated before and 6, 12, and 24 months after epilepsy surgery. Data were analysed nonparametrically and using analysis of variance for repeated measures.
RESULTS: Group-wise, seizure parameters had almost normalized 6 months after surgery (p<0.001) and remained so. Two years after surgery, 15 (72%) patients were free of seizures. At the first postsurgical assessment, parents and children evaluated the frequency of activities as improved and that of seizures as diminished (p<0.05). Parents evaluated their children as having positive emotions more frequently (p<0.05). Children started to feel better about seizure variables in the second year after surgery. Two years after surgery, children perceived themselves as being socially more competent and having greater self-worth (p=0.05). In the adolescent group, several aspects of self-perceived competence improved shortly after surgery (p<0.05), whereas 2 years after surgery, athletic competence and romance had improved (p<0.05).
CONCLUSIONS: In children and adolescents, epilepsy surgery sets the stage for improvement in HrQoL and in competence to participate in social and societal domains. Most improvement occurs in the first 6 months after surgery.

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Year:  2005        PMID: 15679507     DOI: 10.1111/j.0013-9580.2005.27304.x

Source DB:  PubMed          Journal:  Epilepsia        ISSN: 0013-9580            Impact factor:   5.864


  10 in total

1.  "A journey around the world": Parent narratives of the journey to pediatric resective epilepsy surgery and beyond.

Authors:  Christine B Baca; Huibrie C Pieters; Tomoko J Iwaki; Gary W Mathern; Barbara G Vickrey
Journal:  Epilepsia       Date:  2015-04-20       Impact factor: 5.864

2.  Time to pediatric epilepsy surgery is related to disease severity and nonclinical factors.

Authors:  Christine B Baca; Barbara G Vickrey; Stefanie Vassar; Jason S Hauptman; Andrew Dadour; Taemin Oh; Noriko Salamon; Harry V Vinters; Raman Sankar; Gary W Mathern
Journal:  Neurology       Date:  2013-03-06       Impact factor: 9.910

3.  High frequency oscillations in the intra-operative ECoG to guide epilepsy surgery ("The HFO Trial"): study protocol for a randomized controlled trial.

Authors:  Maryse A van 't Klooster; Frans S S Leijten; Geertjan Huiskamp; Hanneke E Ronner; Johannes C Baayen; Peter C van Rijen; Martinus J C Eijkemans; Kees P J Braun; Maeike Zijlmans
Journal:  Trials       Date:  2015-09-23       Impact factor: 2.279

4.  Long-term intellectual outcome after temporal lobe surgery in childhood.

Authors:  C Skirrow; J H Cross; F Cormack; W Harkness; F Vargha-Khadem; T Baldeweg
Journal:  Neurology       Date:  2011-04-12       Impact factor: 9.910

5.  Changes in health-related quality of life (HRQoL) in a population-based sample of children and adolescents after 3 years of follow-up.

Authors:  J A Palacio-Vieira; E Villalonga-Olives; J M Valderas; M Espallargues; M Herdman; S Berra; J Alonso; L Rajmil
Journal:  Qual Life Res       Date:  2008-10-18       Impact factor: 4.147

6.  Childhood predictors of adolescent competence and self-worth in rural youth.

Authors:  Lynn Rew; Matthew W Grady; Micajah Spoden
Journal:  J Child Adolesc Psychiatr Nurs       Date:  2012-10-11

7.  Factorial Structure and Psychometric Analysis of the Persian Version of Perceived Competence Scale for Diabetes (PCSD-P).

Authors:  Habibeh Matin; Haidar Nadrian; Parvin Sarbakhsh; Abdolreza Shaghaghi
Journal:  Behav Sci (Basel)       Date:  2019-05-07

8.  Changes in quality of life among Norwegian school children: a six-month follow-up study.

Authors:  Thomas Jozefiak; Bo Larsson; Lars Wichstrøm
Journal:  Health Qual Life Outcomes       Date:  2009-02-04       Impact factor: 3.186

9.  The role of epilepsy surgery in the treatment of childhood epileptic encephalopathy.

Authors:  Husam R Kayyali; Ahmed Abdelmoity; Saleh Baeesa
Journal:  Epilepsy Res Treat       Date:  2013-04-18

10.  Epilepsy surgery in pediatric intractable epilepsy with destructive encephalopathy.

Authors:  So Young Park; Hye Eun Kwon; Hoon-Chul Kang; Joon Soo Lee; Dong Seok Kim; Heung Dong Kim
Journal:  J Epilepsy Res       Date:  2013-12-30
  10 in total

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