Literature DB >> 15648383

Disclosure of Alzheimer's disease. Senior citizens' opinions.

Marie-Andrée Ouimet1, Nandini Dendukuri, Dominique Dion, Eric Beizile, Michel Elie.   

Abstract

OBJECTIVE: To determine the proportion of elderly people without dementia who would want disclosure of a diagnosis of Alzheimer's disease (AD), for themselves or for their spouses, and to verify whether the availability of medication would influence their decision.
DESIGN: A cross-sectional survey with a semistructured questionnaire completed during face-to-face interviews.
SETTING: Medical and surgical outpatient clinics in St Mary's Hospital Center. PARTICIPANTS: 204 subjects 65 years or older with at most mild cognitive impairment. MAIN OUTCOME MEASURES: Percentage of positive responses for disclosure of a diagnosis of AD to self or to spouse, with or without medication.
RESULTS: Nearly all (98%) subjects wanted disclosure for themselves. Most (78%) wanted disclosure for their potentially afflicted spouses when medication was said to be unavailable. This proportion increased to 97%, however, if medication was available.
CONCLUSION: Most participants requested honesty for themselves. Most wanted disclosure to a potentially affected spouse when medication is said to be available.

Entities:  

Keywords:  Empirical Approach; Professional Patient Relationship

Mesh:

Year:  2004        PMID: 15648383      PMCID: PMC2214533     

Source DB:  PubMed          Journal:  Can Fam Physician        ISSN: 0008-350X            Impact factor:   3.275


  21 in total

1.  Truth-telling and the diagnosis of dementia.

Authors:  G Pinner
Journal:  Br J Psychiatry       Date:  2000-06       Impact factor: 9.319

2.  On telling the truth in Alzheimer's disease: a pilot study of current practice and attitudes.

Authors:  H Johnson; W P Bouman; G Pinner
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3.  On truth telling and the diagnosis of Alzheimer's disease.

Authors:  E L Erde; E C Nadal; T O Scholl
Journal:  J Fam Pract       Date:  1988-04       Impact factor: 0.493

Review 4.  Disclosing a diagnosis of Alzheimer's disease: patient and family experiences.

Authors:  A P Smith; B L Beattie
Journal:  Can J Neurol Sci       Date:  2001-02       Impact factor: 2.104

5.  Validity study of the short portable mental status questionnaire for the elderly.

Authors:  M A Smyer; B F Hofland; E A Jonas
Journal:  J Am Geriatr Soc       Date:  1979-06       Impact factor: 5.562

6.  Short Portable Mental Status Questionnaire as a screening test for dementia and delirium among the elderly.

Authors:  T Erkinjuntti; R Sulkava; J Wikström; L Autio
Journal:  J Am Geriatr Soc       Date:  1987-05       Impact factor: 5.562

7.  A short portable mental status questionnaire for the assessment of organic brain deficit in elderly patients.

Authors:  E Pfeiffer
Journal:  J Am Geriatr Soc       Date:  1975-10       Impact factor: 5.562

8.  Suicide in two patients with Alzheimer's disease.

Authors:  K Rohde; E R Peskind; M A Raskind
Journal:  J Am Geriatr Soc       Date:  1995-02       Impact factor: 5.562

9.  Would you like to know what is wrong with you? On telling the truth to patients with dementia.

Authors:  M Marzanski
Journal:  J Med Ethics       Date:  2000-04       Impact factor: 2.903

10.  Diagnostic disclosure in dementia: an opportunity for intervention?

Authors:  H J Husband
Journal:  Int J Geriatr Psychiatry       Date:  2000-06       Impact factor: 3.485

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  4 in total

1.  The art of sharing the diagnosis and management of Alzheimer's disease with patients and caregivers: recommendations of an expert consensus panel.

Authors:  George T Grossberg; Daniel D Christensen; Patrick A Griffith; Diana R Kerwin; Gail Hunt; Eric J Hall
Journal:  Prim Care Companion J Clin Psychiatry       Date:  2010

2.  Alzheimer's Disease - Why We Need Early Diagnosis.

Authors:  Jill Rasmussen; Haya Langerman
Journal:  Degener Neurol Neuromuscul Dis       Date:  2019-12-24

3.  General practitioner's clinical practices, difficulties and educational needs to manage Alzheimer's disease in France: analysis of national telephone-inquiry data.

Authors:  Dominique Somme; Arnaud Gautier; Stéphanie Pin; Aline Corvol
Journal:  BMC Fam Pract       Date:  2013-06-13       Impact factor: 2.497

4.  Appropriate disclosure of a diagnosis of dementia: identifying the key behaviours of 'best practice'.

Authors:  Jan Lecouturier; Claire Bamford; Julian C Hughes; Jillian J Francis; Robbie Foy; Marie Johnston; Martin P Eccles
Journal:  BMC Health Serv Res       Date:  2008-05-01       Impact factor: 2.655

  4 in total

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