Literature DB >> 15476758

'Being in the same boat': ethnographic insights into an adolescent cancer unit.

Daniel Kelly1, Susie Pearce, Anne Mulhall.   

Abstract

Cancer may be considered a particularly challenging diagnosis for adolescents. Treatment for adolescents in the United Kingdom may be provided in paediatric or adult settings or, more rarely, in specialist adolescent cancer units. An ethnographic approach was adopted to gather 'insiders' views of one such unit using in-depth interviews with patients, parents and professionals, as well as non-participant observation of key events. Two data themes 'cancer and the cancer unit' and 'changes over time' are discussed in this paper. Benefits of the unit included shared understandings and the manner in which the privations of adolescent cancer were contained and managed by those involved.

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Year:  2004        PMID: 15476758     DOI: 10.1016/j.ijnurstu.2004.03.011

Source DB:  PubMed          Journal:  Int J Nurs Stud        ISSN: 0020-7489            Impact factor:   5.837


  6 in total

1.  "Perhaps I will die young." Fears and worries regarding disease and death among Danish adolescents and young adults with cancer. A mixed method study.

Authors:  Bibi Hølge-Hazelton; Helle U Timm; Christian Graugaard; Kirsten A Boisen; Cecilie Dyg Sperling
Journal:  Support Care Cancer       Date:  2016-06-28       Impact factor: 3.603

2.  Psychosocial Experiences of Young Adults Diagnosed With Acute Leukemia During Hospitalization for Induction Chemotherapy Treatment.

Authors:  Tara A Albrecht; Jessica Keim-Malpass; Michael Boyiadzis; Margaret Rosenzweig
Journal:  J Hosp Palliat Nurs       Date:  2019-04       Impact factor: 1.918

3.  If psychosis were cancer: a speculative comparison.

Authors:  Michael Larkin; Zoë Boden; Elizabeth Newton
Journal:  Med Humanit       Date:  2017-06

4.  Connecting with healthcare providers at diagnosis: adolescent/young adult cancer survivors' perspectives.

Authors:  Celeste R Phillips; Joan E Haase; Marion E Broome; Janet S Carpenter; Richard M Frankel
Journal:  Int J Qual Stud Health Well-being       Date:  2017-12

5.  Conceptualizing age-appropriate care for teenagers and young adults with cancer: a qualitative mixed-methods study.

Authors:  Sarah Lea; Rachel M Taylor; Ana Martins; Lorna A Fern; Jeremy S Whelan; Faith Gibson
Journal:  Adolesc Health Med Ther       Date:  2018-10-24

6.  Development and validation of the BRIGHTLIGHT Survey, a patient-reported experience measure for young people with cancer.

Authors:  Rachel M Taylor; Lorna A Fern; Anita Solanki; Louise Hooker; Anna Carluccio; Julia Pye; David Jeans; Tom Frere-Smith; Faith Gibson; Julie Barber; Rosalind Raine; Dan Stark; Richard Feltbower; Susie Pearce; Jeremy S Whelan
Journal:  Health Qual Life Outcomes       Date:  2015-07-28       Impact factor: 3.186

  6 in total

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