Literature DB >> 15466117

Providing a primary care medical home for children and youth with cerebral palsy.

W Carl Cooley.   

Abstract

Children and youth with cerebral palsy present pediatricians with complex diagnostic and therapeutic challenges. In most instances, care also requires communication and comanagement with pediatric subspecialists and pediatric surgical specialists, therapists, and community developmental and educational teams. The importance of family resilience to the patient's well-being broadens the ecologic scope of care, which highlights the value of a primary care medical home from which care is initiated, coordinated, and monitored and with which families can form a reliable alliance for information, support, and advocacy from the time of diagnosis through the transition to adulthood. This report reviews the aspects of care specific to cerebral palsy that a medical home should provide beyond the routine health maintenance, preventive care, and anticipatory guidance needed by all children.

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Year:  2004        PMID: 15466117     DOI: 10.1542/peds.2004-1409

Source DB:  PubMed          Journal:  Pediatrics        ISSN: 0031-4005            Impact factor:   7.124


  11 in total

1.  Community Outreach and Cardiovascular Health (COACH) Trial: a randomized, controlled trial of nurse practitioner/community health worker cardiovascular disease risk reduction in urban community health centers.

Authors:  Jerilyn K Allen; Cheryl R Dennison-Himmelfarb; Sarah L Szanton; Lee Bone; Martha N Hill; David M Levine; Murray West; Amy Barlow; LaPricia Lewis-Boyer; Mary Donnelly-Strozzo; Carol Curtis; Katherine Anderson
Journal:  Circ Cardiovasc Qual Outcomes       Date:  2011-09-27

Review 2.  Hospital-based comprehensive care programs for children with special health care needs: a systematic review.

Authors:  Eyal Cohen; Vesna Jovcevska; Dennis Z Kuo; Sanjay Mahant
Journal:  Arch Pediatr Adolesc Med       Date:  2011-06

Review 3.  Children with medical complexity: an emerging population for clinical and research initiatives.

Authors:  Eyal Cohen; Dennis Z Kuo; Rishi Agrawal; Jay G Berry; Santi K M Bhagat; Tamara D Simon; Rajendu Srivastava
Journal:  Pediatrics       Date:  2011-02-21       Impact factor: 7.124

Review 4.  Diagnosis, treatment, and prevention of cerebral palsy.

Authors:  Thomas Michael O'Shea
Journal:  Clin Obstet Gynecol       Date:  2008-12       Impact factor: 2.190

5.  Observations from the Balcony: Directions for Pediatric Health Disparities Research and Policy.

Authors:  Jean L Raphael
Journal:  J Appl Res Child       Date:  2013

6.  A web-based communication system for integrated care in cerebral palsy: experienced contribution to parent-professional communication.

Authors:  Jitske Gulmans; Miriam Vollenbroek-Hutten; Lisette van Gemert-Pijnen; Wim van Harten
Journal:  Int J Integr Care       Date:  2012-03-06       Impact factor: 5.120

7.  Sprint, agility, strength and endurance capacity in wheelchair basketball players.

Authors:  J Yanci; C Granados; M Otero; A Badiola; J Olasagasti; I Bidaurrazaga-Letona; A Iturricastillo; Sm Gil
Journal:  Biol Sport       Date:  2014-11-03       Impact factor: 2.806

8.  Home-based versus center-based care in children with cerebral palsy: a cost-effectiveness analysis.

Authors:  E Sharif Azar; M Ravanbakhsh; A Torabipour; E Amiri; M H Haghighyzade
Journal:  J Med Life       Date:  2015

Review 9.  Impact of telemedicine on health outcomes in children with medical complexity: an integrative review.

Authors:  Federico Ferro; Alberto Eugenio Tozzi; Ilaria Erba; Immacolata Dall'Oglio; Andrea Campana; Corrado Cecchetti; Caterina Geremia; Maria Luisa Rega; Gloria Tontini; Emanuela Tiozzo; Orsola Gawronski
Journal:  Eur J Pediatr       Date:  2021-07-01       Impact factor: 3.183

10.  Jump landing characteristics in elite soccer players with cerebral palsy.

Authors:  J Cámara; I Grande; G Mejuto; A Los Arcos; J Yanci
Journal:  Biol Sport       Date:  2013-04-11       Impact factor: 2.806

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