Literature DB >> 15465941

Patients' experiences of an open access follow up arrangement in managing inflammatory bowel disease.

A Rogers1, A Kennedy, E Nelson, A Robinson.   

Abstract

BACKGROUND: Improving access is a key policy issue in improving quality of care and extending patient choice and participation. People's experience of changing from fixed outpatient appointments to more flexible direct access arrangements for chronic disease has been underexplored.
OBJECTIVES: To examine patients' views on using an open system of access compared with fixed outpatient appointments as part of a guided self-management intervention for inflammatory bowel disease (IBD).
DESIGN: Embedded qualitative study undertaken alongside a randomised controlled trial. Semi-structured interviews were undertaken to obtain an in depth understanding of patients' experience of the change in access arrangements. PARTICIPANTS: A purposive sample (n = 30) was drawn from the intervention group (n = 700) according to a range of responses to the trial baseline and follow up quantitative measures.
RESULTS: 28 interviews were included in the analysis. Compared with the previous system of fixed appointments, preference for the new open access system was based on enhanced personal control in contacting services and the view that it fitted better with everyday routine management and the requirement for urgent medical contact when symptoms fail to respond to medication. Preference for retaining fixed appointments was based on a sense of security from gaining access which did not require the individual to initiate the request for medical help.
CONCLUSIONS: Open access may fit better with patients' self-management of their condition and everyday routines, roles and responsibilities. Ensuring that outpatient organisational arrangements and personnel are responsive to patient initiated requests for appointments is likely to impact on the acceptability of this type of access arrangement. Some people may continue to prefer the fixed appointment system which should be retained if patient choice is to be respected.

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Year:  2004        PMID: 15465941      PMCID: PMC1743885          DOI: 10.1136/qhc.13.5.374

Source DB:  PubMed          Journal:  Qual Saf Health Care        ISSN: 1475-3898


  14 in total

1.  Intermediate care.

Authors:  David Pencheon
Journal:  BMJ       Date:  2002-06-08

2.  The genesis of chronic illness: narrative re-construction.

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3.  A patient led NHS: managing demand at the interface between lay and primary care.

Authors:  A Rogers; V Entwistle; D Pencheon
Journal:  BMJ       Date:  1998-06-13

4.  Open access follow up for inflammatory bowel disease: pragmatic randomised trial and cost effectiveness study.

Authors:  J G Williams; W Y Cheung; I T Russell; D R Cohen; M Longo; B Lervy
Journal:  BMJ       Date:  2000-02-26

5.  Development of a guidebook to promote patient participation in the management of ulcerative colitis.

Authors:  Anne P. Kennedy; Andrew J. Robinson; David G. Thompson; David Wilkin
Journal:  Health Soc Care Community       Date:  1999-05

6.  Managing patient demand: a qualitative study of appointment making in general practice.

Authors:  M Gallagher; P Pearson; C Drinkwater; J Guy
Journal:  Br J Gen Pract       Date:  2001-04       Impact factor: 5.386

Review 7.  Improving self-management skills: a whole systems approach.

Authors:  A Kennedy; A Rogers
Journal:  Br J Nurs       Date:  2001 Jun 14-27

8.  Guided self-management and patient-directed follow-up of ulcerative colitis: a randomised trial.

Authors:  A Robinson; D G Thompson; D Wilkin; C Roberts
Journal:  Lancet       Date:  2001-09-22       Impact factor: 79.321

9.  The role of the receptionist in general practice: a 'dragon behind the desk'?

Authors:  S Arber; L Sawyer
Journal:  Soc Sci Med       Date:  1985       Impact factor: 4.634

10.  Information for patients about inflammatory bowel disease.

Authors:  J C Mansfield; A R Tanner; M G Bramble
Journal:  J R Coll Physicians Lond       Date:  1997 Mar-Apr
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  3 in total

1.  A cluster randomised controlled trial of the clinical and cost-effectiveness of a 'whole systems' model of self-management support for the management of long- term conditions in primary care: trial protocol.

Authors:  Peter Bower; Anne Kennedy; David Reeves; Anne Rogers; Tom Blakeman; Carolyn Chew-Graham; Robert Bowen; Martin Eden; Caroline Gardner; Mark Hann; Victoria Lee; Rebecca Morris; Joanne Protheroe; Gerry Richardson; Caroline Sanders; Angela Swallow; David Thompson
Journal:  Implement Sci       Date:  2012-01-26       Impact factor: 7.327

2.  Patient-initiated appointment systems for adults with chronic conditions in secondary care.

Authors:  Rebecca Whear; Joanna Thompson-Coon; Morwenna Rogers; Rebecca A Abbott; Lindsey Anderson; Obioha Ukoumunne; Justin Matthews; Victoria A Goodwin; Simon Briscoe; Mark Perry; Ken Stein
Journal:  Cochrane Database Syst Rev       Date:  2020-04-09

3.  Modelling self-management pathways for people with diabetes in primary care.

Authors:  Marion L Penn; Anne P Kennedy; Ivaylo I Vassilev; Carolyn A Chew-Graham; Joanne Protheroe; Anne Rogers; Tom Monks
Journal:  BMC Fam Pract       Date:  2015-09-02       Impact factor: 2.497

  3 in total

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