Literature DB >> 15285198

Genetic databases: assessing the benefits and the impact on human and patient rights--a WHO report.

Graeme Laurie.   

Abstract

Entities:  

Keywords:  Biomedical and Behavioral Research; Genetics and Reproduction

Mesh：

Year:  2004        PMID： 15285198     DOI： 10.1163/157180904323042380

Source DB:  PubMed          Journal:  Eur J Health Law        ISSN： 0929-0273


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  11 in total

1.  Genomic research and incidental findings.

Authors:  Brian Van Ness
Journal:  J Law Med Ethics       Date:  2008       Impact factor: 1.718

Review 2.  Next-Generation Sequencing and the Return of Results.

Authors:  Bartha Maria Knoppers; Minh Thu Nguyen; Karine Sénécal; Anne Marie Tassé; Ma'n H Zawati
Journal:  Cold Spring Harb Perspect Med       Date:  2016-10-03       Impact factor: 6.915

Review 3.  Children and biobanks: a review of the ethical and legal discussion.

Authors:  Kristien Hens; Emmanuelle Lévesque; Kris Dierickx
Journal:  Hum Genet       Date:  2011-06-10       Impact factor: 4.132

4.  Ethics in prevention science involving genetic testing.

Authors:  Celia B Fisher; Erika L Harrington McCarthy
Journal:  Prev Sci       Date:  2013-06

5.  Comparison of participant information and informed consent forms of five European studies in genetic isolated populations.

Authors:  Deborah Mascalzoni; A Cecile J W Janssens; Alison Stewart; Peter Pramstaller; Ulf Gyllensten; Igor Rudan; Cornelia M van Duijn; James F Wilson; Harry Campbell; Ruth M C Quillan
Journal:  Eur J Hum Genet       Date:  2009-10-14       Impact factor: 4.246

6.  Post-genomic clinical trials: the perspective of ACGT.

Authors:  N Graf; C Desmedt; F Buffa; D Kafetzopoulos; N Forgó; R Kollek; A Hoppe; G Stamatakos; M Tsiknakis
Journal:  Ecancermedicalscience       Date:  2008-01-21

7.  Improving the informed consent process in international collaborative rare disease research: effective consent for effective research.

Authors:  Sabina Gainotti; Cathy Turner; Simon Woods; Anna Kole; Pauline McCormack; Hanns Lochmüller; Olaf Riess; Volker Straub; Manuel Posada; Domenica Taruscio; Deborah Mascalzoni
Journal:  Eur J Hum Genet       Date:  2016-02-10       Impact factor: 4.246

8.  Ethical sharing of health data in online platforms - which values should be considered?

Authors:  Brígida Riso; Aaro Tupasela; Danya F Vears; Heike Felzmann; Julian Cockbain; Michele Loi; Nana C H Kongsholm; Silvia Zullo; Vojin Rakic
Journal:  Life Sci Soc Policy       Date:  2017-08-21

9.  Stakeholders' perspectives on the post-mortem use of genetic and health-related data for research: a systematic review.

Authors:  Marieke A R Bak; M Corrette Ploem; Hakan Ateşyürek; Marieke T Blom; Hanno L Tan; Dick L Willems
Journal:  Eur J Hum Genet       Date:  2019-09-16       Impact factor: 4.246

10.  Human genome editing: how to prevent rogue actors.

Authors:  Beverley A Townsend
Journal:  BMC Med Ethics       Date:  2020-10-06       Impact factor: 2.652
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