Literature DB >> 15284160

Ethical review of research into rare genetic disorders.

M Parker1, R Ashcroft, A O M Wilkie, A Kent.   

Abstract

Entities:  

Keywords:  Biomedical and Behavioral Research; Genetics and Reproduction

Mesh:

Year:  2004        PMID: 15284160      PMCID: PMC498040          DOI: 10.1136/bmj.329.7460.288

Source DB:  PubMed          Journal:  BMJ        ISSN: 0959-8138


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  12 in total

1.  Clinical research under the cosh again.

Authors:  Charles Warlow
Journal:  BMJ       Date:  2004-07-31

2.  Research bureaucracy in the United Kingdom: practical example illustrates problems of ethical review of genetics.

Authors:  Patrick Morrison
Journal:  BMJ       Date:  2004-09-11

3.  Research bureaucracy in the United Kingdom: seeking a balance: response from the Department of Health and COREC.

Authors:  John Pattison; Terry Stacey
Journal:  BMJ       Date:  2004-09-11

Review 4.  A decision tool to guide the ethics review of a challenging breed of emerging genomic projects.

Authors:  Yann Joly; Derek So; Gladys Osien; Laura Crimi; Martin Bobrow; Don Chalmers; Susan E Wallace; Nikolajs Zeps; Bartha Knoppers
Journal:  Eur J Hum Genet       Date:  2016-01-20       Impact factor: 4.246

5.  Ethics review of research and audit.

Authors:  Kamran Abbasi; Iona Heath
Journal:  BMJ       Date:  2005-02-26

6.  Satisfaction with life in adults with Marfan syndrome (MFS): associations with health-related consequences of MFS, pain, fatigue, and demographic factors.

Authors:  Gry Velvin; Trine Bathen; Svend Rand-Hendriksen; Amy Østertun Geirdal
Journal:  Qual Life Res       Date:  2016-01-04       Impact factor: 4.147

7.  The changing landscape of genetic testing and its impact on clinical and laboratory services and research in Europe.

Authors:  Ros Hastings; Guido de Wert; Brian Fowler; Michael Krawczak; Eric Vermeulen; Egbert Bakker; Pascal Borry; Wybo Dondorp; Niels Nijsingh; David Barton; Jörg Schmidtke; Carla G van El; Joris Vermeesch; Yrrah Stol; Heidi Carmen Howard; Martina C Cornel
Journal:  Eur J Hum Genet       Date:  2012-03-28       Impact factor: 4.246

8.  The unintended implications of blurring the line between research and clinical care in a genomic age.

Authors:  Benjamin E Berkman; Sara Chandros Hull; Lisa Eckstein
Journal:  Per Med       Date:  2014       Impact factor: 2.512

Review 9.  Research governance: ethical issues.

Authors:  Anne Slowther; Petra Boynton; Sara Shaw
Journal:  J R Soc Med       Date:  2006-02       Impact factor: 18.000

10.  Genetic research on rare familial disorders: consent and the blurred boundaries between clinical service and research.

Authors:  M Ponder; H Statham; N Hallowell; J A Moon; M Richards; F L Raymond
Journal:  J Med Ethics       Date:  2008-09       Impact factor: 2.903

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