Literature DB >> 15282897

The governance of human genetics: policy discourse and constructions of public trust.

Mavis Jones1, Brian Salter.   

Abstract

The collection of practices now commonly understood as 'biotechnology' poses a challenge to traditional mechanisms of regulating science and technology, just as it challenges traditional practices of science. The task of regulation is to reconcile the often conflicting political demands of protecting science, economy and the public interest. Public trust is the key measure of political success or failure. The purpose of this paper is to use policy discourse analysis as a vehicle for exploring the politics of the relationship between human genetics governance and public trust. An analysis of 30 policy documents produced six identifiable discourse streams relevant to public trust. These findings will be discussed, and an analysis of their impact on effective governance presented in conclusion.

Entities:  

Keywords:  Biomedical and Behavioral Research; Empirical Approach; Genetics and Reproduction; Legal Approach

Mesh:

Year:  2003        PMID: 15282897     DOI: 10.1080/1463677032000069691

Source DB:  PubMed          Journal:  New Genet Soc        ISSN: 1463-6778


  4 in total

Review 1.  Global consumption and the challenge to pharmaceutical governance in the United Kingdom.

Authors:  Nick Fox; Katie Ward
Journal:  BMJ       Date:  2005-07-02

2.  'Medicine's next goldmine?' The implications of new genetic health technologies for the health service.

Authors:  Michael Calnan; David Wainwright; Peter Glasner; Ruth Newbury-Ecob; Ewan Ferlie
Journal:  Med Health Care Philos       Date:  2006

3.  Constructing populations in biobanking.

Authors:  Aaro Tupasela; Karoliina Snell; Jose A Cañada
Journal:  Life Sci Soc Policy       Date:  2015-07-21

Review 4.  Defining the spectrum of genome policy.

Authors:  Susanne B Haga; Huntington F Willard
Journal:  Nat Rev Genet       Date:  2006-12       Impact factor: 53.242

  4 in total

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