Literature DB >> 15249267

Setting the public agenda for online health search: a white paper and action agenda.

Liza Greenberg1, Guy D'Andrea, Dan Lorence.   

Abstract

BACKGROUND: Searches for health information are among the most common reasons that consumers use the Internet. Both consumers and quality experts have raised concerns about the quality of information on the Web and the ability of consumers to find accurate information that meets their needs.
OBJECTIVE: To produce a national stakeholder-driven agenda for research, technical improvements, and education that will improve the results of consumer searches for health information on the Internet.
METHODS: URAC, a national accreditation organization, and Consumer WebWatch (CWW), a project of Consumers Union (a consumer advocacy organization), conducted a review of factors influencing the results of online health searches. The organizations convened two stakeholder groups of consumers, quality experts, search engine experts, researchers, health-care providers, informatics specialists, and others. Meeting participants reviewed existing information and developed recommendations for improving the results of online consumer searches for health information. Participants were not asked to vote on or endorse the recommendations. Our working definition of a quality Web site was one that contained accurate, reliable, and complete information.
RESULTS: The Internet has greatly improved access to health information for consumers. There is great variation in how consumers seek information via the Internet, and in how successful they are in searching for health information. Further, there is variation among Web sites, both in quality and accessibility. Many Web site features affect the capability of search engines to find and index them.
CONCLUSIONS: Research is needed to define quality elements of Web sites that could be retrieved by search engines and understand how to meet the needs of different types of searchers. Technological research should seek to develop more sophisticated approaches for tagging information, and to develop searches that "learn" from consumer behavior. Finally, education initiatives are needed to help consumers search more effectively and to help them critically evaluate the information they find.

Entities:  

Mesh:

Year:  2004        PMID: 15249267      PMCID: PMC1550592          DOI: 10.2196/jmir.6.2.e18

Source DB:  PubMed          Journal:  J Med Internet Res        ISSN: 1438-8871            Impact factor:   5.428


  19 in total

Review 1.  Published criteria for evaluating health related web sites: review.

Authors:  P Kim; T R Eng; M J Deering; A Maxfield
Journal:  BMJ       Date:  1999-03-06

Review 2.  Examination of instruments used to rate quality of health information on the internet: chronicle of a voyage with an unclear destination.

Authors:  Anna Gagliardi; Alejandro R Jadad
Journal:  BMJ       Date:  2002-03-09

3.  WHO calls for a health domain name to help consumers.

Authors:  Phyllida Brown
Journal:  BMJ       Date:  2002-03-09

Review 4.  How to find the good and avoid the bad or ugly: a short guide to tools for rating quality of health information on the internet.

Authors:  Petra Wilson
Journal:  BMJ       Date:  2002-03-09

5.  Accuracy of information on apparently credible websites: survey of five common health topics.

Authors:  Heinke Kunst; Diederik Groot; Pallavi M Latthe; Manish Latthe; Khalid S Khan
Journal:  BMJ       Date:  2002-03-09

6.  Health information on the Internet: accessibility, quality, and readability in English and Spanish.

Authors:  G K Berland; M N Elliott; L S Morales; J I Algazy; R L Kravitz; M S Broder; D E Kanouse; J A Muñoz; J A Puyol; M Lara; K E Watkins; H Yang; E A McGlynn
Journal:  JAMA       Date:  2001 May 23-30       Impact factor: 56.272

7.  Comparing Web search engine performance in searching consumer health information: evaluation and recommendations.

Authors:  G Wu; J Li
Journal:  Bull Med Libr Assoc       Date:  1999-10

8.  Breast cancer on the world wide web: cross sectional survey of quality of information and popularity of websites.

Authors:  Funda Meric; Elmer V Bernstam; Nadeem Q Mirza; Kelly K Hunt; Frederick C Ames; Merrick I Ross; Henry M Kuerer; Raphael E Pollock; Mark A Musen; S Eva Singletary
Journal:  BMJ       Date:  2002-03-09

9.  How do consumers search for and appraise health information on the world wide web? Qualitative study using focus groups, usability tests, and in-depth interviews.

Authors:  Gunther Eysenbach; Christian Köhler
Journal:  BMJ       Date:  2002-03-09

10.  Survey of doctors' experience of patients using the Internet.

Authors:  Henry W W Potts; Jeremy C Wyatt
Journal:  J Med Internet Res       Date:  2002 Jan-Mar       Impact factor: 5.428

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  17 in total

Review 1.  Promoting health literacy.

Authors:  Alexa T McCray
Journal:  J Am Med Inform Assoc       Date:  2004-11-23       Impact factor: 4.497

2.  Exploring user navigation during online health information seeking.

Authors:  Laurel Graham; Tony Tse; Alla Keselman
Journal:  AMIA Annu Symp Proc       Date:  2006

3.  Why there can be no sustainable national healthcare IT program without a translational health information science.

Authors:  Daniel Lorence
Journal:  J Med Syst       Date:  2007-12       Impact factor: 4.460

4.  Seeking health information online: does Wikipedia matter?

Authors:  Michaël R Laurent; Tim J Vickers
Journal:  J Am Med Inform Assoc       Date:  2009-04-23       Impact factor: 4.497

Review 5.  Quality of nutritional information on the Internet in health and disease.

Authors:  K Gkouskou; A Markaki; M Vasilaki; A Roidis; I Vlastos
Journal:  Hippokratia       Date:  2011-10       Impact factor: 0.471

6.  Patient-Centered Tools for Medication Information Search.

Authors:  Lauren Wilcox; Steven Feiner; Noémie Elhadad; David Vawdrey; Tran H Tran
Journal:  Int Conf Pervasive Comput Technol Healthc       Date:  2014-05-20

7.  Assessment of osteoporosis-website quality.

Authors:  E M Lewiecki; L A Rudolph; G M Kiebzak; J R Chavez; B M Thorpe
Journal:  Osteoporos Int       Date:  2006-01-31       Impact factor: 4.507

Review 8.  The urgent matter of online pro-eating disorder content and children: clinical practice.

Authors:  Kathleen Custers
Journal:  Eur J Pediatr       Date:  2015-01-30       Impact factor: 3.183

9.  Age-sensitive design of online health information: comparative usability study.

Authors:  Richard Pak; Margaux M Price; Jason Thatcher
Journal:  J Med Internet Res       Date:  2009-11-16       Impact factor: 5.428

10.  Quality of online health information about oral contraceptives from Hebrew-language websites.

Authors:  Yehuda Neumark; Lior Flum; Catalina Lopez-Quintero; Ronny Shtarkshall
Journal:  Isr J Health Policy Res       Date:  2012-09-24
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