Literature DB >> 15212864

Improving health care for adult survivors of childhood cancer: recommendations from a delphi panel of health policy experts.

Ann C Mertens1, Kelly L Cotter, Barbara M Foster, Brad J Zebrack, Melissa M Hudson, Debra Eshelman, Lauren Loftis, Margaret Sozio, Kevin C Oeffinger.   

Abstract

OBJECTIVES: To identify barriers to, models of care for, and initiatives to improve health care of adult survivors of childhood cancer.
METHODS: Seventeen health care policy experts were asked to respond to the three objectives through a three-iterative Delphi process.
RESULTS: Key barriers identified were that primary care physicians are unfamiliar with the health problems of survivors and survivors are often unaware of their risks. The recommended model of care would incorporate the chronic disease management model. Highest priority initiatives recommended were targeted education of primary care physicians and survivors, development and evaluation of standards of survivorship care, and a national web-based information center.
CONCLUSIONS: The insights and recommendations of the panel provide a foundation intended to improve health care of cancer survivors.

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Mesh:

Year:  2004        PMID: 15212864     DOI: 10.1016/j.healthpol.2003.12.008

Source DB:  PubMed          Journal:  Health Policy        ISSN: 0168-8510            Impact factor:   2.980


  39 in total

1.  Screening and surveillance for second malignant neoplasms in adult survivors of childhood cancer: a report from the childhood cancer survivor study.

Authors:  Paul Craig Nathan; Kirsten Kimberlie Ness; Martin Christopher Mahoney; Zhenghong Li; Melissa Maria Hudson; Jennifer Sylene Ford; Wendy Landier; Marilyn Stovall; Gregory Thomas Armstrong; Tara Olive Henderson; Leslie L Robison; Kevin Charles Oeffinger
Journal:  Ann Intern Med       Date:  2010-10-05       Impact factor: 25.391

2.  A cross-Canada survey of clinical programs for the care of survivors of cancer in childhood and adolescence.

Authors:  Svetlana Ristovski-Slijepcevic; Ronald Barr; Mark Bernstein; Paul C Nathan
Journal:  Paediatr Child Health       Date:  2009-07       Impact factor: 2.253

3.  The future workforce in cancer prevention: advancing discovery, research, and technology.

Authors:  Wayne D Newhauser; Michael E Scheurer; Jessica M Faupel-Badger; Jessica Clague; Jeffrey Weitzel; Kendra V Woods
Journal:  J Cancer Educ       Date:  2012-05       Impact factor: 2.037

4.  Do the organizational reforms of general practice care meet users' concerns? The contribution of the Delphi method.

Authors:  Nicolas Krucien; Marc Le Vaillant; Nathalie Pelletier-Fleury
Journal:  Health Expect       Date:  2011-06-17       Impact factor: 3.377

5.  Evaluation of a survivorship educational program for adolescent and young adult survivors of childhood cancer.

Authors:  Kristin Bingen; Mary Jo Kupst
Journal:  J Cancer Educ       Date:  2010-12       Impact factor: 2.037

6.  The perceived impact of cancer on quality of life for post-treatment survivors of childhood cancer.

Authors:  Brad J Zebrack; Wendy Landier
Journal:  Qual Life Res       Date:  2011-03-31       Impact factor: 4.147

Review 7.  Evidence-based recommendations for the organization of long-term follow-up care for childhood and adolescent cancer survivors: a report from the PanCareSurFup Guidelines Working Group.

Authors:  Gisela Michel; Renée L Mulder; Helena J H van der Pal; Roderick Skinner; Edit Bárdi; Morven C Brown; Janine Vetsch; Eva Frey; Rachael Windsor; Leontien C M Kremer; Gill Levitt
Journal:  J Cancer Surviv       Date:  2019-08-08       Impact factor: 4.442

8.  Adolescent patients with chronic health conditions transitioning into adult care: What role should family physicians play?

Authors:  Roger Chafe; Rayzel Shulman; Astrid Guttmann; Kris Aubrey-Bassler
Journal:  Can Fam Physician       Date:  2019-05       Impact factor: 3.275

9. 

Authors:  Roger Chafe; Rayzel Shulman; Astrid Guttmann; Kris Aubrey-Bassler
Journal:  Can Fam Physician       Date:  2019-05       Impact factor: 3.275

10.  The Role of Primary Care Physicians in Childhood Cancer Survivorship Care: Multiperspective Interviews.

Authors:  Christina Signorelli; Claire E Wakefield; Joanna E Fardell; Tali Foreman; Karen A Johnston; Jon Emery; Elysia Thornton-Benko; Afaf Girgis; Hanne C Lie; Richard J Cohn
Journal:  Oncologist       Date:  2018-08-31
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