Literature DB >> 15180094

Intersex(es) and informed consent: how physicians' rhetoric constrains choice.

J David Hester1.   

Abstract

When a child is born with ambiguous genitalia it is declared a psychosocial emergency, and the policy first proposed by John Money (Johns Hopkins University) and adapted by the American Academy of Pediatrics (and more broadly accepted in Canada, the U.K., and Europe) requires determination of underlying condition(s), selection of gender, surgical intervention, and a commitment by all parties to accept the "real sex" of the patient, all no later than 18-24 months, preferably earlier. Ethicists have recently questioned this protocol on several grounds: lack of medical necessity, violation of informed consent, uncertainty of standards of success, among others. This suggests that the faults in the protocol can be addressed and improved. Through a rhetorical approach informed by Perelman/Olbrechts-Tyteca, the disciplinary pathologization and reconstruction of the body are explored as incidents of constraining rhetoric that enact their persuasion upon the body of intersexed children. This essay shows that the presumptions, judgments, values, and presuppositions brought by the physician to the identification, diagnosis, and curative procedures create a network of constraints that exclude alternative possibilities. The result is a situation wherein parents, physicians, and intersexed patients have "no choice" but to accept the medical treatment guidelines.

Entities:  

Keywords:  Professional Patient Relationship

Mesh:

Year:  2004        PMID: 15180094     DOI: 10.1023/b:meta.0000025069.46031.0e

Source DB:  PubMed          Journal:  Theor Med Bioeth        ISSN: 1386-7415


  36 in total

1.  Managing intersex.

Authors:  S Creighton; C Minto
Journal:  BMJ       Date:  2001-12-01

2.  An emerging ethical and medical dilemma: should physicians perform sex assignment surgery on infants with ambiguous genitalia?

Authors:  H G Beh; M Diamond
Journal:  Mich J Gend Law       Date:  2000

3.  Anatomical studies of the human clitoris.

Authors:  L S Baskin; A Erol; Y W Li; W H Liu; E Kurzrock; G R Cunha
Journal:  J Urol       Date:  1999-09       Impact factor: 7.450

4.  Sex reassignment at birth. Long-term review and clinical implications.

Authors:  M Diamond; H K Sigmundson
Journal:  Arch Pediatr Adolesc Med       Date:  1997-03

5.  Long-term psychological evaluation of intersex children.

Authors:  F M Slijper; S L Drop; J C Molenaar; S M de Muinck Keizer-Schrama
Journal:  Arch Sex Behav       Date:  1998-04

6.  Feminizing genitoplasty for congenital adrenal hyperplasia: what happens at puberty?

Authors:  N K Alizai; D F Thomas; R J Lilford; A G Batchelor; N Johnson
Journal:  J Urol       Date:  1999-05       Impact factor: 7.450

7.  Objective cosmetic and anatomical outcomes at adolescence of feminising surgery for ambiguous genitalia done in childhood.

Authors:  S M Creighton; C L Minto; S J Steele
Journal:  Lancet       Date:  2001-07-14       Impact factor: 79.321

Review 8.  Gender and sexuality in classic congenital adrenal hyperplasia.

Authors:  H F Meyer-Bahlburg
Journal:  Endocrinol Metab Clin North Am       Date:  2001-03       Impact factor: 4.741

9.  Mutually gratifying heterosexual relationship with micropenis of husband.

Authors:  A P van Seters; A K Slob
Journal:  J Sex Marital Ther       Date:  1988

10.  Surgical reinforcement of gender identity in adolescent intersex patients.

Authors:  S A Holmes; J M Kirk; S Liu; M O Savage; R S Kirby
Journal:  Urol Int       Date:  1992       Impact factor: 2.089

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  3 in total

1.  Intersexual Births: The Epistemology of Sex and Ethics of Sex Assignment.

Authors:  Matteo Cresti; Elena Nave; Roberto Lala
Journal:  J Bioeth Inq       Date:  2018-10-26       Impact factor: 1.352

Review 2.  Do the Benefits of Male Circumcision Outweigh the Risks? A Critique of the Proposed CDC Guidelines.

Authors:  Brian D Earp
Journal:  Front Pediatr       Date:  2015-03-18       Impact factor: 3.418

3.  Public challenge and endorsement of sex category ambiguity in online debate: 'The sooner people stop thinking that gender is a matter of choice the better'.

Authors:  Helen Sweeting; Matthew William Maycock; Laura Walker; Kate Hunt
Journal:  Sociol Health Illn       Date:  2016-11-16
  3 in total

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