Literature DB >> 15132256

Family-centered service for children with cerebral palsy and their families: a review of the literature.

Susanne King1, Rachel Teplicky, Gillian King, Peter Rosenbaum.   

Abstract

Pediatric neurologists and other specialists working with children with cerebral palsy or other disabilities play important roles in providing services in ways that make a difference in the lives of these children and their families. This article defines family-centered service and outlines a conceptual framework of the premises and principles underlying this approach to service delivery. Research evidence supporting family-centered service is presented for child, parent/family and service system outcomes, with a focus on community-based rehabilitation or health care services. The research evidence shows strong support for family-centered service in promoting the psychosocial well-being of children and their parents and in leading to increased satisfaction with services. There is less evidence for other outcomes. It is recommended that all service providers assess their beliefs and behaviors about family-centered service.

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Mesh:

Year:  2004        PMID: 15132256     DOI: 10.1016/j.spen.2004.01.009

Source DB:  PubMed          Journal:  Semin Pediatr Neurol        ISSN: 1071-9091            Impact factor:   1.636


  36 in total

1.  A Case Review: Reframing School-Based Practices Using a Critical Perspective.

Authors:  Shanon K Phelan; Stella L Ng
Journal:  Phys Occup Ther Pediatr       Date:  2014-11-17       Impact factor: 2.360

2.  Psychosocial Needs and Facilitators of Mothers Caring for Children with Duchenne/Becker Muscular Dystrophy.

Authors:  Holly L Peay; Bettina Meiser; Kathleen Kinnett; Aad Tibben
Journal:  J Genet Couns       Date:  2017-08-12       Impact factor: 2.537

3.  Brazilian versions of the Measure of Processes of Care-20 and Measure of Processes of Care-Service Providers: translation, cross-cultural adaptation and reliability.

Authors:  Ana Amélia Moraes Antunes; Sheyla Rossana Cavalcanti Furtado; Lívia de Castro Magalhães; Renata Noce Kirkwood; Daniela Virginia Vaz
Journal:  Braz J Phys Ther       Date:  2019-02-27       Impact factor: 3.377

4.  Feasibility of caregiver-directed home-based hand-arm bimanual intensive training: a brief report.

Authors:  Claudio L Ferre; Marina B Brandão; Ya-Ching Hung; Jason B Carmel; Andrew M Gordon
Journal:  Dev Neurorehabil       Date:  2014-09-02       Impact factor: 2.308

5.  Early prediction of cerebral palsy after neonatal intensive care using motor development trajectories in infancy.

Authors:  Nathalie L Maitre; James C Slaughter; Judy L Aschner
Journal:  Early Hum Dev       Date:  2013-07-12       Impact factor: 2.079

6.  Family-centered Outcomes that Matter Most to Parents: A Pediatric Feeding Disorders Qualitative Study.

Authors:  Meg Simione; Anna Nicole Dartley; Christine Cooper-Vince; Victoria Martin; Christopher Hartnick; Elsie M Taveras; Lauren Fiechtner
Journal:  J Pediatr Gastroenterol Nutr       Date:  2020-08       Impact factor: 2.839

7.  Impact of Grandchild Caregiving on African American Grandparents.

Authors:  Preethy S Samuel; Christina N Marsack; Lisa A Johnson; Barbara W LeRoy; Catherine L Lysack; Peter A Lichtenberg
Journal:  Occup Ther Health Care       Date:  2016-11-02

8.  Is the Give Youth a Voice questionnaire an appropriate measure of teen-centred care in paediatric oncology: a Rasch measurement theory analysis.

Authors:  Anne F Klassen; Stefan J Cano; Roona Sinha; Areej Shahbaz; Robert Klaassen; David Dix
Journal:  Health Expect       Date:  2013-11-28       Impact factor: 3.377

9.  LEARN 2 MOVE 2-3: a randomized controlled trial on the efficacy of child-focused intervention and context-focused intervention in preschool children with cerebral palsy.

Authors:  Marjolijn Ketelaar; Anne J A Kruijsen; Olaf Verschuren; Marian J Jongmans; Jan Willem Gorter; Johannes Verheijden; Heleen A Reinders-Messelink; Eline Lindeman
Journal:  BMC Pediatr       Date:  2010-11-08       Impact factor: 2.125

10.  The Role of Mentors in Early Intervention Referrals: Overlooked Views of Pediatric Residency Training Directors.

Authors:  Nicole Megan Edwards
Journal:  Matern Child Health J       Date:  2018-05
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