Literature DB >> 15132249

New directions in the outcome evaluation of children with cerebral palsy.

Annette Majnemer1, Barbara Mazer.   

Abstract

This article addresses newly emerging concepts regarding the examination of outcomes in children with cerebral palsy (CP). Three important factors have prompted a change toward a broader approach to outcome measurement: (1) the recent endorsement of the World Health Organization classification scheme of functioning, disability, and health; (2) recognition of the importance of the role of child and environmental factors in modifying outcome; and (3) appreciation of the challenges faced at key transitions during development. Comparison of the literature on outcomes in children with CP published in 2002 with studies published 10 years earlier demonstrates an increased number of studies and a wider range of outcome measures used to characterize the functioning of these children. A better understanding of the extent and nature of the outcomes and their determinants is critical to guide clinical decision making and program planning to maximize community integration, social participation, and overall well-being of the child and family.

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Mesh:

Year:  2004        PMID: 15132249     DOI: 10.1016/j.spen.2004.01.003

Source DB:  PubMed          Journal:  Semin Pediatr Neurol        ISSN: 1071-9091            Impact factor:   1.636


  13 in total

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Authors:  Preena Patel; Michelle Koh; Lucinda Carr; Kieran McHugh
Journal:  Pediatr Radiol       Date:  2014-01-07

2.  Social participation: the perspectives of adolescents with cerebral palsy and their mothers.

Authors:  Priscila Bianchi Lopes; Keiko Shikako-Thomas; Roberta Cardoso; Thelma Simões Matsukura
Journal:  Int J Dev Disabil       Date:  2019-07-31

3.  Evaluation of an item bank for a computerized adaptive test of activity in children with cerebral palsy.

Authors:  Stephen M Haley; Maria A Fragala-Pinkham; Helene M Dumas; Pengsheng Ni; George E Gorton; Kyle Watson; Kathleen Montpetit; Nathalie Bilodeau; Ronald K Hambleton; Carole A Tucker
Journal:  Phys Ther       Date:  2009-05-07

4.  Factors that Predict Overall Health and Quality of Life in Non-Ambulatory Individuals with Cerebral Palsy.

Authors:  Samuel E Kolman; Allan M Glanzman; Laura Prosser; David A Spiegel; Keith D Baldwin
Journal:  Iowa Orthop J       Date:  2018

5.  Parenting and Child Personality as Modifiers of the Psychosocial Development of Youth with Cerebral Palsy.

Authors:  Lana E De Clercq; Bart Soenens; Lisa M Dieleman; Peter Prinzie; Jolene Van der Kaap-Deeder; Wim Beyers; Sarah S W De Pauw
Journal:  Child Psychiatry Hum Dev       Date:  2021-01-06

6.  Factors related to psychosocial quality of life for children with cerebral palsy.

Authors:  D W Tessier; J L Hefner; A Newmeyer
Journal:  Int J Pediatr       Date:  2014-01-23

7.  Participation in life situations of 8-12 year old children with cerebral palsy: cross sectional European study.

Authors:  Jérôme Fauconnier; Heather O Dickinson; Eva Beckung; Marco Marcelli; Vicki McManus; Susan I Michelsen; Jackie Parkes; Kathryn N Parkinson; Ute Thyen; Catherine Arnaud; Allan Colver
Journal:  BMJ       Date:  2009-04-24

8.  Play and be happy? Leisure participation and quality of life in school-aged children with cerebral palsy.

Authors:  Keiko Shikako-Thomas; Noémi Dahan-Oliel; Michael Shevell; Mary Law; Rena Birnbaum; Peter Rosenbaum; Chantal Poulin; Annette Majnemer
Journal:  Int J Pediatr       Date:  2012-08-07

9.  Validation of the Focus on the Outcomes of Communication under Six outcome measure.

Authors:  Nancy Thomas-Stonell; Bruce Oddson; Bernadette Robertson; Peter Rosenbaum
Journal:  Dev Med Child Neurol       Date:  2013-03-06       Impact factor: 5.449

10.  Development of an outcome measurement system for service planning for children and youth with special needs.

Authors:  M K Kertoy; D J Russell; P Rosenbaum; S Jaffer; M Law; D McCauley; J W Gorter
Journal:  Child Care Health Dev       Date:  2012-07-30       Impact factor: 2.508

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