Literature DB >> 15117389

Consulted but not heard: a qualitative study of young people's views of their local health service.

Katherine Curtis1, Kristin Liabo, Helen Roberts, Maggie Barker.   

Abstract

OBJECTIVES: The objective of this study was to identify what children and young people in a health district in a large urban area experience as positive--and not so positive--about their local health services, in the light of a growing expectation that users play a more central role in the design and delivery of services.
DESIGN: A qualitative study incorporating a range of methods, including interviews, play techniques and a website.
SETTING: Schools, nurseries, community groups, in- and outpatient settings in an inner London health authority. PARTICIPANTS: Young people aged between 4 and 19 years, from community (n = 92) and clinical (n = 57) settings. This included 'hard-to-reach' children, including those leaving care, those in touch with the criminal justice system, asylum seekers, and those with learning disabilities.
RESULTS: Alongside planning and environment issues, young people particularly emphasized the impact of communication and relationships with staff on their experience of health services. DISCUSSION AND
CONCLUSIONS: Using a range of flexible and age-appropriate techniques, young people, even those as young as 4 or 5, are able to comment helpfully on their experiences of service provision. What children had to say is revealing but not astonishing to those working in the National Health Service (NHS). Clinicians and managers, to whom our findings were fed back, made this clear. If we have known for so long that the issues raised here are problems, why are we so poor at acting on this knowledge? The authors suggest four explanations.

Entities:  

Mesh:

Year:  2004        PMID: 15117389      PMCID: PMC5060224          DOI: 10.1111/j.1369-7625.2004.00265.x

Source DB:  PubMed          Journal:  Health Expect        ISSN: 1369-6513            Impact factor:   3.377


  5 in total

1.  Who is speaking for children and adolescents and for their health at the policy level?

Authors:  A Aynsley-Green; M Barker; S Burr; A Macfarlane; J Morgan; J Sibert; T Turner; R Viner; T Waterston; D Hall
Journal:  BMJ       Date:  2000-07-22

2.  Accountability for clinical governance: developing collective responsibility for quality in primary care.

Authors:  P Allen
Journal:  BMJ       Date:  2000-09-09

3.  Whatever happened to shared decision-making?

Authors:  Angela Coulter
Journal:  Health Expect       Date:  2002-09       Impact factor: 3.377

4.  Process and impact of mergers of NHS trusts: multicentre case study and management cost analysis.

Authors:  Naomi Fulop; Gerasimos Protopsaltis; Andrew Hutchings; Annette King; Pauline Allen; Charles Normand; Rhiannon Walters
Journal:  BMJ       Date:  2002-08-03

5.  What is participatory research?

Authors:  A Cornwall; R Jewkes
Journal:  Soc Sci Med       Date:  1995-12       Impact factor: 4.634

  5 in total
  14 in total

1.  Incomprehensible consent forms: child friendly consent forms lead the way.

Authors:  Katherine Curtis; Helen Roberts
Journal:  BMJ       Date:  2005-06-18

2.  What choices should we be able to make about designer babies? A Citizens' Jury of young people in South Wales.

Authors:  Rachel Iredale; Marcus Longley; Christian Thomas; Anita Shaw
Journal:  Health Expect       Date:  2006-09       Impact factor: 3.377

3.  Revealing the hidden agency of children in a clinical setting.

Authors:  Christine Dedding; Ria Reis; Bart Wolf; Anita Hardon
Journal:  Health Expect       Date:  2014-03-11       Impact factor: 3.377

4.  Expectations held by type 1 and 2 diabetes mellitus patients and their relatives: the importance of facilitating the health-care process.

Authors:  María J Escudero-Carretero; Mángeles Prieto-Rodríguez; Isabel Fernández-Fernández; Joan Carles March-Cerdá
Journal:  Health Expect       Date:  2007-12       Impact factor: 3.377

5.  '[I would like] a place to be alone, other than the toilet'--Children's perspectives on paediatric hospital care in the Netherlands.

Authors:  Inge Schalkers; Christine W M Dedding; Joske F G Bunders
Journal:  Health Expect       Date:  2014-01-26       Impact factor: 3.377

6.  Participation of Children in Medical Decision-Making: Challenges and Potential Solutions.

Authors:  Vida Jeremic; Karine Sénécal; Pascal Borry; Davit Chokoshvili; Danya F Vears
Journal:  J Bioeth Inq       Date:  2016-09-21       Impact factor: 1.352

7.  Exciting but exhausting: experiences with participatory research with chronically ill adolescents.

Authors:  Anneloes van Staa; Susan Jedeloo; Jos M Latour; Margo J Trappenburg
Journal:  Health Expect       Date:  2009-08-13       Impact factor: 3.377

8.  Living with diabetes: quality of care and quality of life.

Authors:  Pilar Isla Pera
Journal:  Patient Prefer Adherence       Date:  2011-01-20       Impact factor: 2.711

9.  Co-production with "vulnerable" groups: Balancing protection and participation.

Authors:  Kristin Liabo; Anne Ingold; Helen Roberts
Journal:  Health Sci Rep       Date:  2017-12-06

10.  'Why does it happen like this?' Consulting with users and providers prior to an evaluation of services for children with life limiting conditions and their families.

Authors:  Anne Hunt; Erica Brown; Jane Coad; Sophie Staniszewska; Suzanne Hacking; Brigit Chesworth; Lizzie Chambers
Journal:  J Child Health Care       Date:  2013-11-21       Impact factor: 1.979

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