Literature DB >> 15058540

How a family is affected when a child is born with anorectal malformation. Interviews with three patients and their parents.

Margret Nisell1, Maria Ojmyr-Joelsson, Björn Frenckner, Per-Anders Rydelius, Kyllike Christensson.   

Abstract

Increased knowledge about families with a malformed child affects nursing practice. This study illuminates the experiences and psychosocial situation of 3 patients with imperforate anus and their parents. A qualitative method has been used to analyze the data. We found that the parents' experiences of suffering were overwhelming and that the 3 patients had been depressed during periods. The patients were not as open as their parents; we need to devise better tools to explore and understand children's experiences. The children and their parents need special care and an opportunity to express their anxieties.

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Year:  2003        PMID： 15058540     DOI： 10.1016/s0882-5963(03)00029-0

Source DB:  PubMed          Journal:  J Pediatr Nurs        ISSN： 0882-5963            Impact factor:   2.145


  9 in total

1.  Long-term outcome of anorectal malformations: the patient perspective.

Authors:  C H Hamid; A J A Holland; H C O Martin
Journal:  Pediatr Surg Int       Date:  2006-12-14       Impact factor: 1.827

2.  Children with high and intermediate imperforate anus: their experiences of hospital care.

Authors:  Maria Ojmyr-Joelsson; Björn Frenckner; Per-Anders Rydelius; Margret Nisell
Journal:  Pediatr Surg Int       Date:  2011-05-18       Impact factor: 1.827

3.  Psychosocial aspects of follow-up of children operated for intermediate anorectal malformations.

Authors:  Viju John; Jacob Chacko; John Mathai; Sampath Karl; Sudipta Sen
Journal:  Pediatr Surg Int       Date:  2010-10       Impact factor: 1.827

4.  Children with high and intermediate imperforate anus: remembering and talking about medical treatment carried out early in life.

Authors:  Maria Ojmyr-Joelsson; Kyllike Christensson; Björn Frenckner; Margret Nisell; Torun Lindholm
Journal:  Pediatr Surg Int       Date:  2008-07-31       Impact factor: 1.827

5.  From crisis to self-confidence and adaptation; Experiences of being a parent of a child with VACTERL association - A complex congenital malformation.

Authors:  Ann-Marie Kassa; Helene Engstrand Lilja; Gunn Engvall
Journal:  PLoS One       Date:  2019-04-19       Impact factor: 3.240

6.  Distress and post-traumatic stress in parents of patients with congenital gastrointestinal malformations: a cross-sectional cohort study.

Authors:  D Roorda; A F W van der Steeg; M van Dijk; J P M Derikx; R R Gorter; J Rotteveel; J B van Goudoever; L W E van Heurn; J Oosterlaan; L Haverman
Journal:  Orphanet J Rare Dis       Date:  2022-09-11       Impact factor: 4.303

7.  The Imperforate Anus Psychosocial Questionnaire (IAPSQ): its construction and psychometric properties.

Authors:  Margret Nisell; Ulf Brodin; Kyllike Christensson; Per-Anders Rydelius
Journal:  Child Adolesc Psychiatry Ment Health       Date:  2009-05-14       Impact factor: 3.033

8.  Children and adolescents with VACTERL association: health-related quality of life and psychological well-being in children and adolescents and their parents.

Authors:  A-M Kassa; M Dellenmark-Blom; J Thorsell Cederberg; G Engvall; H Engstrand Lilja
Journal:  Qual Life Res       Date:  2019-11-18       Impact factor: 4.147

9.  Experiences of parents who give pharmacological treatment to children with functional constipation at home.

Authors:  Gunilla Flankegård; Evalotte Mörelius; Karel Duchen; Patrik Rytterström
Journal:  J Adv Nurs       Date:  2020-10-12       Impact factor: 3.187
  9 in total

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