Literature DB >> 15050873

Prenatal diagnosis of cerebral malformation with an uncertain prognosis: a study concerning couple's information and consequences on pregnancy.

Marie-Laure Moutard1, Grégoire Moutel, Irène François, Isabelle Fauriel, Josué Feingold, Gérard Ponsot, Christian Hervé.   

Abstract

UNLABELLED: Fetal ultrasound (FU) is used during almost all pregnancies and makes a large contribution to the identification of fetal malformation. It is particularly difficult to announce a malformation, particularly those affecting the brain, because there are often doubts concerning both the diagnosis and the prognosis. AIM: The aim of this study was to analyze how imaging for prenatal screening is organized and how couples are managed and supported. We concentrated on the procedures used to inform couples: content, method of delivery and consequences.
METHOD: Study amongst large multidisciplinary centers in Paris and the Paris region, by semi-directed interviews using a questionnaire.
RESULTS: We showed that it is difficult to standardize the way in which information is supplied before and after the examination, and that doctors tend to recommend abortion when the prognosis is uncertain. DISCUSSION: These results provide information that will help decision-making concerning a standardized procedure allowing couples to benefit from all the capacities of prenatal screening, particularly when the diagnosis and prognosis are uncertain. There is a need for multidisciplinary teams to support and to accompany the decision concerning whether to have an abortion or to continue the pregnancy.

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Mesh:

Year:  2004        PMID: 15050873     DOI: 10.1016/j.anngen.2003.10.004

Source DB:  PubMed          Journal:  Ann Genet        ISSN: 0003-3995


  2 in total

1.  Decision making concerning life-sustaining treatment in paediatric nephrology: professionals' experiences and values.

Authors:  Isabelle Fauriel; Grégoire Moutel; Nathalie Duchange; Luc Montuclard; Marie-Laure Moutard; Pierre Cochat; Christian Hervé
Journal:  Nephrol Dial Transplant       Date:  2005-10-04       Impact factor: 5.992

2.  Is counselling for CCAM that difficult? Learning from parental experience.

Authors:  Lucia Aite; Antonio Zaccara; Alessandro Trucchi; Antonella Nahom; Irma Capolupo; Luisa Mobili; Pietro Bagolan
Journal:  J Prenat Med       Date:  2011-07
  2 in total

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