Literature DB >> 14962347

Involving users with learning difficulties in health improvement: lessons from inclusive learning disability research.

Jan Walmsley1.   

Abstract

In this paper the author considers the lessons to be drawn from what is termed "inclusive" learning disability research for user involvement around health improvement. Inclusive learning disability research refers to research where people with learning difficulties (intellectual disability) are involved as active participants, as opposed to passive subjects. There is by now a considerable body of such research, developed over the past 25 years. From the review, the author draws attention to areas which can inform practice in involvement of users in a way that adds value.

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Year:  2004        PMID: 14962347     DOI: 10.1111/j.1440-1800.2004.00197.x

Source DB:  PubMed          Journal:  Nurs Inq        ISSN: 1320-7881            Impact factor:   2.393


  10 in total

1.  Measuring preparedness for mammography in women with intellectual disabilities: a validation study of the Mammography Preparedness Measure.

Authors:  Claire Tienwey Wang; Nechama Greenwood; Laura F White; Joanne Wilkinson
Journal:  J Appl Res Intellect Disabil       Date:  2014-09-30

2.  Community-engagement strategies of the developmental disabilities practice-based research network (DD-PBRN).

Authors:  Carl V Tyler; James J Werner
Journal:  J Am Board Fam Med       Date:  2014 Nov-Dec       Impact factor: 2.657

3.  Co-researching with people with learning disabilities: an experience of involvement in qualitative data analysis.

Authors:  Irene Tuffrey-Wijne; Gary Butler
Journal:  Health Expect       Date:  2009-09-08       Impact factor: 3.377

4.  Using virtual reality to provide health care information to people with intellectual disabilities: acceptability, usability, and potential utility.

Authors:  Valerie Hall; Suzanne Conboy-Hill; Dave Taylor
Journal:  J Med Internet Res       Date:  2011-11-14       Impact factor: 5.428

Review 5.  Patient engagement in research: a systematic review.

Authors:  Juan Pablo Domecq; Gabriela Prutsky; Tarig Elraiyah; Zhen Wang; Mohammed Nabhan; Nathan Shippee; Juan Pablo Brito; Kasey Boehmer; Rim Hasan; Belal Firwana; Patricia Erwin; David Eton; Jeff Sloan; Victor Montori; Noor Asi; Abd Moain Abu Dabrh; Mohammad Hassan Murad
Journal:  BMC Health Serv Res       Date:  2014-02-26       Impact factor: 2.655

6.  'I'm sure we made it a better study…': Experiences of adults with intellectual disabilities and parent carers of patient and public involvement in a health research study.

Authors:  Carole Beighton; Christina Victor; Iain M Carey; Fay Hosking; Steve DeWilde; Derek G Cook; Paula Manners; Tess Harris
Journal:  J Intellect Disabil       Date:  2017-08-16

7.  Facilitators and barriers to co-research by people with dementia and academic researchers: Findings from a qualitative study.

Authors:  Jacob Waite; Fiona Poland; Georgina Charlesworth
Journal:  Health Expect       Date:  2019-04-22       Impact factor: 3.377

8.  On the unethicality of disablism: Excluding intellectually impaired individuals from participating in research can be unethical.

Authors:  Charlotte Capri; Ockert Coetzee
Journal:  Afr J Disabil       Date:  2012-09-04

9.  Lessons learned from participatory research to enhance client participation in long-term care research: a multiple case study.

Authors:  Aukelien Scheffelaar; Nanne Bos; Marjan de Jong; Mattanja Triemstra; Sandra van Dulmen; Katrien Luijkx
Journal:  Res Involv Engagem       Date:  2020-06-01

10.  The READ-IT study protocol for a feasibility randomised controlled trial of using a support worker/family carer mediated online reading programme to teach early reading skills to adults with intellectual disabilities.

Authors:  Gwenllian Moody; Elinor Coulman; David Gillespie; Mark Goddard; Corinna Grindle; Richard P Hastings; Carl Hughes; Kate Ingarfield; Zac Taylor; Louise Denne
Journal:  Pilot Feasibility Stud       Date:  2022-01-22
  10 in total

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