Literature DB >> 14768455

The experience of spousal carers of people with multiple sclerosis.

Jenny Cheung1, Peta Hocking.   

Abstract

This phenomenological-interpretative inquiry explores spousal carers' experience of caring for their partner while confronting many apparent losses. Ten spousal carers of people with multiple sclerosis (MS) participated in the study. The authors collected data using unstructured in-depth interviews and analyzed them using a hermeneutic method. The constitutive pattern, Weaving Through a Web of Paradoxes, that emerged from the data described how these participants' experience in caring for their partner has changed their way of living and their being. The authors present in this article some of the paradoxes that capture carers' experiences of loss and gain, and their feelings of vulnerability and strength. The insight gained from this study adds new understanding of responses to non-death-related losses.

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Year:  2004        PMID: 14768455     DOI: 10.1177/1049732303258382

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  9 in total

1.  Recruiting for caregiver education research: perspectives of caregivers of people with multiple sclerosis.

Authors:  Katharine Preissner; Marcia Finlayson; Christin Henkel
Journal:  Int J MS Care       Date:  2012

2.  Informal caregivers assisting people with multiple sclerosis: factors associated with the strength of the caregiver/care recipient relationship.

Authors:  Robert J Buchanan; Chunfeng Huang
Journal:  Int J MS Care       Date:  2011

3.  The need for mental health care among informal caregivers assisting people with multiple sclerosis.

Authors:  Robert J Buchanan; Chunfeng Huang
Journal:  Int J MS Care       Date:  2013

4.  "It's just horrible": a qualitative study of patients' and carers' experiences of bowel dysfunction in multiple sclerosis.

Authors:  Lesley Dibley; Maureen Coggrave; Doreen McClurg; Sue Woodward; Christine Norton
Journal:  J Neurol       Date:  2017-05-26       Impact factor: 4.849

5.  Caregiver burden in multiple sclerosis: the impact of neuropsychiatric symptoms.

Authors:  Nanna Figved; Kjell-Morten Myhr; Jan-Petter Larsen; Dag Aarsland
Journal:  J Neurol Neurosurg Psychiatry       Date:  2007-01-19       Impact factor: 10.154

6.  Mental health problems in children of somatically ill parents, e.g. multiple sclerosis.

Authors:  Barbara Steck; Felix Amsler; Andrea Grether; Alexandra Schwald Dillier; Christiane Baldus; Miriam Haagen; L Diareme; John Tsiantis; Ludwig Kappos; Dieter Bürgin; Georg Romer
Journal:  Eur Child Adolesc Psychiatry       Date:  2006-11-29       Impact factor: 5.349

7.  Admission Decision-Making in Hospital Emergency Departments: The Role of the Accompanying Person.

Authors:  Susanna Rance; Debra Westlake; Heather Brant; Ingrid Holme; Ruth Endacott; Jonathan Pinkney; Richard Byng
Journal:  Glob Qual Nurs Res       Date:  2020-06-18

8.  Anorectal dysfunction in multiple sclerosis: a systematic review.

Authors:  Sanober Nusrat; Elsie Gulick; David Levinthal; Klaus Bielefeldt
Journal:  ISRN Neurol       Date:  2012-07-29

Review 9.  Intertwined like a double helix: A meta-synthesis of the qualitative literature examining the experiences of living with someone with multiple sclerosis.

Authors:  Anne Parkinson; Crystal Brunoro; Jack Leayr; Vanessa Fanning; Katrina Chisholm; Janet Drew; Jane Desborough; Christine Phillips
Journal:  Health Expect       Date:  2022-02-04       Impact factor: 3.318

  9 in total

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