Literature DB >> 14725981

Parents and their cochlear implanted child: questionnaire development to assess parental views and experiences.

Ciaran O'Neill1, Mark E Lutman, Sue M Archbold, Sue Gregory, Thomas P Nikolopoulos.   

Abstract

OBJECTIVES: To test the reliability of a validated closed-format questionnaire assessing parental views following cochlear implantation of their child.
DESIGN: Parents were surveyed using a closed-format questionnaire developed in earlier work. The same parents were surveyed 1 month later and responses compared. Test-retest reliability was thereby assessed.
SETTING: Tertiary referral Pediatric Cochlear Implant Centre in the UK. SUBJECTS AND METHODS: The parents of 20 children who had been born deaf or were deafened by age 3 years and who had been implanted for at least 2 years were drawn at random from patient lists. Parents were surveyed using a closed-format questionnaire whose validity had been previously assessed and re-surveyed 1 month later. Responses over time were compared.
RESULTS: For the majority of items in the questionnaire, the replication of the item would lead to the same response on at least 95% of occasions. The text of the closed-format questionnaire is reproduced in full.
CONCLUSION: This validated closed-format questionnaire appears to be unique in respect of cochlear implantation, being based explicitly on issues thought important by the parents. The high test-retest reliability indicates that it is capable of eliciting parental views in a meaningful manner. This information that is not currently available by other means can then be used as part of an overall assessment of outcomes, to inform efforts aimed at quality improvement as well as demonstrating accountability to purchasers and policymakers. Moreover, a wider use of this instrument can result in valid comparisons of outcomes among different cochlear implant centres.

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Year:  2004        PMID: 14725981     DOI: 10.1016/j.ijporl.2003.09.015

Source DB:  PubMed          Journal:  Int J Pediatr Otorhinolaryngol        ISSN: 0165-5876            Impact factor:   1.675


  9 in total

1.  Parents' View on Quality of Life after Cochlear Implantation in Children with Auditory Neuropathy.

Authors:  Taşkın Tokat; Tolgahan Çatlı; Ergün Başaran Bozkurt; Görkem Atsal; Togay Muderris; Levent Olgun
Journal:  J Int Adv Otol       Date:  2019-12       Impact factor: 1.017

2.  Parental Expectation and Perception of CI Benefits in Their Implanted Wards.

Authors:  Md Noorain Alam; Sanjay Munjal; Anuradha Sharma; Naresh Panda; N Banumathy
Journal:  Indian J Otolaryngol Head Neck Surg       Date:  2019-01-28

3.  Caregiver-Reported Indicators of Communication and Social Functioning for Young Children Who Are Deaf or Hard of Hearing.

Authors:  Donald L Patrick; Todd C Edwards; Poorna Kushalnagar; Tari Topolski; Brenda Schick; Ann Skalicky; Kathleen Sie
Journal:  J Deaf Stud Deaf Educ       Date:  2018-07-01

4.  A global patient outcomes registry: Cochlear paediatric implanted recipient observational study (Cochlear(™) P-IROS).

Authors:  Georgina Sanderson; Thathya V Ariyaratne; Josephine Wyss; Valerie Looi
Journal:  BMC Ear Nose Throat Disord       Date:  2014-10-06

5.  Quality of life of parents and siblings of children with cochlear implants.

Authors:  Cila Umat; Nor Haniza Abdul Wahat; Sakinah Che Ross; Bee See Goh
Journal:  J Otol       Date:  2018-11-13

6.  Evaluation of quality of life after paediatric cochlear implantation.

Authors:  Jekaterina Byčkova; Justė Simonavičienė; Vaiva Mickevičienė; Eugenijus Lesinskas
Journal:  Acta Med Litu       Date:  2018

7.  Quality of life in children with cochlear implants in Kazakhstan.

Authors:  Ruslan Zhumabayev; Galiya Zhumabayeva; Gulnara Kapanova; Nailya Tulepbekova; Anuar Akhmetzhan; Andrej Grjibovski
Journal:  BMC Pediatr       Date:  2022-04-11       Impact factor: 2.125

8.  Factors influencing the quality of life of children with cochlear implants.

Authors:  Joice de Moura Silva; Midori Otake Yamada; Elida Garbo Guedes; Adriane Lima Mortari Moret
Journal:  Braz J Otorhinolaryngol       Date:  2019-02-22

9.  Children with cochlear implants: communication skills and quality of life.

Authors:  Talita Fortunato-Tavares; Debora Befi-Lopes; Ricardo Ferreira Bento; Claudia Regina Furquim de Andrade
Journal:  Braz J Otorhinolaryngol       Date:  2012-02
  9 in total

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