Literature DB >> 14674578

Gentle hugs: Internet listservs as sources of support for women with lupus.

Cindy Mendelson1.   

Abstract

Systemic lupus erythematosus is a chronic autoimmune illness that usually affects women during their childbearing years. Women with lupus must learn to live with a variety of unpredictable symptoms, making a consistent source of support and information important for day-to-day illness management. For many women, the Internet fills this need. This article reports the findings of a qualitative study of 3 Internet listservs that provide support and information to the community of people living with lupus. Five thematic areas that describe the type of information and support available to listserv participants are described and the benefits of listserv participation are discussed.

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Year:  2003        PMID: 14674578     DOI: 10.1097/00012272-200310000-00007

Source DB:  PubMed          Journal:  ANS Adv Nurs Sci        ISSN: 0161-9268            Impact factor:   1.824


  9 in total

1.  Evaluation of a mail-delivered, print-format, self-management program for persons with systemic sclerosis.

Authors:  Janet L Poole; Betty Skipper; Cindy Mendelson
Journal:  Clin Rheumatol       Date:  2013-05-09       Impact factor: 2.980

2.  'I'm searching for solutions': why are obese individuals turning to the Internet for help and support with 'being fat'?

Authors:  Sophie Lewis; Samantha L Thomas; R Warwick Blood; David Castle; Jim Hyde; Paul A Komesaroff
Journal:  Health Expect       Date:  2010-12-29       Impact factor: 3.377

3.  An exploration of how young people and parents use online support in the context of living with cystic fibrosis.

Authors:  Susan Kirk; Linda Milnes
Journal:  Health Expect       Date:  2015-02-17       Impact factor: 3.377

Review 4.  Effective Self-Management Interventions for Patients With Lupus: Potential Impact of Peer Mentoring.

Authors:  Edith M Williams; Leonard Egede; Trevor Faith; James Oates
Journal:  Am J Med Sci       Date:  2017-02-03       Impact factor: 2.378

5.  Development of a digital toolkit to improve quality of life of patients with systemic lupus erythematosus.

Authors:  Jerik Leung; Laura Kloos; Alfred Hj Kim; Elizabeth A Baker
Journal:  Digit Health       Date:  2021-08-10

6.  Public health awareness of autoimmune diseases after the death of a celebrity.

Authors:  Nicola Luigi Bragazzi; Abdulla Watad; Francesco Brigo; Mohammad Adawi; Howard Amital; Yehuda Shoenfeld
Journal:  Clin Rheumatol       Date:  2016-12-20       Impact factor: 3.650

7.  Patient Perspective on Using Digital Resources to Address Unmet Needs in Systemic Lupus Erythematosus.

Authors:  Jennifer H Ra; Jerik Leung; Elizabeth A Baker; Alfred H J Kim
Journal:  Arthritis Care Res (Hoboken)       Date:  2021-09-08       Impact factor: 5.178

8.  How Patients Contribute to an Online Psychoeducation Forum for Bipolar Disorder: A Virtual Participant Observation Study.

Authors:  Ria Poole; Daniel Smith; Sharon Simpson
Journal:  JMIR Ment Health       Date:  2015-07-08

9.  Arthritis-Related Support in a Social Media Group for Quilting Hobbyists: Qualitative Study.

Authors:  Norina Gasteiger; Rebecca Grainger; Karen Day
Journal:  Interact J Med Res       Date:  2018-10-03
  9 in total

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