Literature DB >> 14673475

Confidentiality and serious harm in genetics - preserving the confidentiality of one patient and preventing harm to relatives.

Anneke Lucassen1, Michael Parker.   

Abstract

Genetics can pose special challenges to the principle of confidentiality within the health professional-patient relationship, since genetic information is by its nature both individual and familial. Most professional guidelines allow confidentiality to be broken in rare circumstances, where it will prevent a 'serious', 'imminent' and 'likely' harm. We argue that the types of harms that may result from genetic medicine are particularly diverse. Using clinical examples, we explore ethical issues that arise when balancing individual and family member interests. As genetic testing becomes more, widespread situations will arise where clinicians are faced with a choice between preserving the confidentiality of one patient and preventing harm to another. Professionals need to incorporate the notion of familial implications in their counseling of individuals. Since such dilemmas have been relatively rare in the pre-genetic age, we call for a wider debate on the balance between confidentiality and harm to others.

Entities:  

Keywords:  Genetics and Reproduction

Mesh:

Year:  2004        PMID: 14673475     DOI: 10.1038/sj.ejhg.5201118

Source DB:  PubMed          Journal:  Eur J Hum Genet        ISSN: 1018-4813            Impact factor:   4.246


  10 in total

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Review 2.  Implications of data protection legislation for family history.

Authors:  Anneke Lucassen; Michael Parker; Robert Wheeler
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5.  Genetic Privacy, Disease Prevention, and the Principle of Rescue.

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6.  Enhancing family communication about genetics: ethical and professional dilemmas.

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Journal:  J Genet Couns       Date:  2012-07-26       Impact factor: 2.537

7.  A Relational Approach to Genetic Counseling for Hereditary Breast and Ovarian Cancer.

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Review 8.  Guidelines for disclosing genetic information to family members: from development to use.

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Journal:  Fam Cancer       Date:  2006       Impact factor: 2.375

9.  Family physicians' management of genetic aspects of a cardiac disease: a scenario-based study from slovenia.

Authors:  Z Klemenc-Ketiš; B Peterlin
Journal:  Balkan J Med Genet       Date:  2014-12-11       Impact factor: 0.519

10.  Neuroethics, confidentiality, and a cultural imperative in early onset Alzheimer disease: a case study with a First Nation population.

Authors:  Shaun Stevenson; B Lynn Beattie; Richard Vedan; Emily Dwosh; Lindsey Bruce; Judy Illes
Journal:  Philos Ethics Humanit Med       Date:  2013-10-16       Impact factor: 2.464

  10 in total

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