OBJECTIVE: This population-based study was designed to examine the psychosocial outcome of Finnish patients who had been operated on for congenital heart disease during childhood. METHODS: A questionnaire was mailed to 3789 adult patients who had been operated on for congenital heart defects in Finland. Of these, 2896 (76%) answered the questionnaire. The mean age of patients was 33 years (range: 18-59 years), and they had had their first operation 9 to 46 years earlier. RESULTS: The patients had coped well with their defects when compared with the general Finnish population. The educational level of patients was comparable to and employment level was higher than expected (70% vs 66%, respectively). They were living in a steady relationship as often as the general population, but the number of parents among the patients was lower than that expected (47% vs 49%, respectively). The incidence of congenital heart disease among the 2697 children of the patients was 2.4%. CONCLUSION: Our results confirm that in addition to high survival rate, the long-term psychosocial outcome of patients with surgically treated congenital heart defects is good if they do not have any additional syndromes that cause mental retardation.
OBJECTIVE: This population-based study was designed to examine the psychosocial outcome of Finnish patients who had been operated on for congenital heart disease during childhood. METHODS: A questionnaire was mailed to 3789 adult patients who had been operated on for congenital heart defects in Finland. Of these, 2896 (76%) answered the questionnaire. The mean age of patients was 33 years (range: 18-59 years), and they had had their first operation 9 to 46 years earlier. RESULTS: The patients had coped well with their defects when compared with the general Finnish population. The educational level of patients was comparable to and employment level was higher than expected (70% vs 66%, respectively). They were living in a steady relationship as often as the general population, but the number of parents among the patients was lower than that expected (47% vs 49%, respectively). The incidence of congenital heart disease among the 2697 children of the patients was 2.4%. CONCLUSION: Our results confirm that in addition to high survival rate, the long-term psychosocial outcome of patients with surgically treated congenital heart defects is good if they do not have any additional syndromes that cause mental retardation.
Authors: Petra Opić; Jolien W Roos-Hesselink; Judith A A Cuypers; Maarten Witsenburg; Annemien van den Bosch; Ron T van Domburg; Ad J J C Bogers; Elisabeth M W J Utens Journal: Clin Res Cardiol Date: 2014-12-07 Impact factor: 5.460
Authors: Cynthia L Gong; Henu Zhao; Yifan Wei; Bryan Tysinger; Dana P Goldman; Roberta G Williams Journal: Pediatr Cardiol Date: 2020-07-10 Impact factor: 1.655
Authors: Maayke A Sluman; Silke Apers; Judith K Sluiter; Karen Nieuwenhuijsen; Philip Moons; Koen Luyckx; Adrienne H Kovacs; Corina Thomet; Werner Budts; Junko Enomoto; Hsiao-Ling Yang; Jamie L Jackson; Paul Khairy; Stephen C Cook; Raghavan Subramanyan; Luis Alday; Katrine Eriksen; Mikael Dellborg; Malin Berghammer; Eva Mattsson; Andrew S Mackie; Samuel Menahem; Maryanne Caruana; Kathy Gosney; Alexandra Soufi; Susan M Fernandes; Kamila S White; Edward Callus; Shelby Kutty; Berto J Bouma; Barbara J M Mulder Journal: Congenit Heart Dis Date: 2019-02-04 Impact factor: 2.007