Literature DB >> 14608815

Delay in presentation in the context of local knowledge and attitude towards leprosy--the results of qualitative fieldwork in Paraguay.

P G Nicholls1, C Wiens, W C Smith.   

Abstract

OBJECTIVE: The primary objective of our research was to explore help-seeking behavior in the context of knowledge, attitude, and practice as factors contributing to delay in presentation in leprosy. The secondary objective was to demonstrate the value of basic qualitative research methods in this context.
METHODOLOGY: Fieldwork was based at the Hospital Mennonita Km 81, the referral center for leprosy services in Paraguay. We adopted exclusively qualitative methods for fieldwork, effectively carrying out a rapid assessment of factors contributing to delay. We relied on multiple sources of information and the use of multiple methods to ensure the validity of our findings.
RESULTS: Our findings linked delay in presentation to traditional beliefs, lack of awareness of the early symptoms of leprosy, stigma, seeking help from natural healers, and to interactions with the health services. Traditional beliefs diminish the importance of the early symptoms of leprosy. Stigma has an impact on decisions to seek help. Natural healers have maintained their traditional status in society; their preferred treatments for leprosy are ineffective. Only rarely do natural healers refer to the health services. Once presented to the health services, some individuals affected by leprosy experienced lengthy delays in diagnosis and start of treatment. DISCUSSION: To address the traditional values of a society and provide effective public health initiatives is a clearly a major challenge for program organizers and for health education. Increased awareness of leprosy and sensitivity to its social consequences among health service practitioners is a further priority.

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Year:  2003        PMID: 14608815     DOI: 10.1489/1544-581X(2003)71<198:DIPITC>2.0.CO;2

Source DB:  PubMed          Journal:  Int J Lepr Other Mycobact Dis        ISSN: 0148-916X


  12 in total

1.  Transmission of leprosy in Qiubei County, Yunnan, China: insights from an 8-year molecular epidemiology investigation.

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Journal:  Infect Genet Evol       Date:  2010-12-01       Impact factor: 3.342

2.  Associated factors study into the belated screening for leprosy in Benin.

Authors:  Ronald Sètondji Gnimavo; Ghislain Emmanuel Sopoh; Parfait Djossou; Esaï Gimatal Anagonou; Gilbert Adjimon Ayélo; Anita Carolle Akpéédjé Wadagni; Yves Thierry Barogui; Jean Gabin Houezo; Roch Christian Johnson
Journal:  PLoS Negl Trop Dis       Date:  2022-06-23

3.  A Cluster-Randomized Controlled Intervention Study to Assess the Effect of a Contact Intervention in Reducing Leprosy-Related Stigma in Indonesia.

Authors:  Ruth M H Peters; Marjolein B M Zweekhorst; Joske F G Bunders; Wim H van Brakel
Journal:  PLoS Negl Trop Dis       Date:  2015-10-20

4.  Assessing the Impact of the Twin Track Socio-Economic Intervention on Reducing Leprosy-Related Stigma in Cirebon District, Indonesia.

Authors:  Dadun Dadun; Ruth M H Peters; Wim H van Brakel; Joske G F Bunders; Irwanto Irwanto; Barbara J Regeer
Journal:  Int J Environ Res Public Health       Date:  2019-01-26       Impact factor: 3.390

5.  The Health Stigma and Discrimination Framework: a global, crosscutting framework to inform research, intervention development, and policy on health-related stigmas.

Authors:  Anne L Stangl; Valerie A Earnshaw; Carmen H Logie; Wim van Brakel; Leickness C Simbayi; Iman Barré; John F Dovidio
Journal:  BMC Med       Date:  2019-02-15       Impact factor: 8.775

6.  Leprosy Reactions In Childhood: A Prospective Cohort Study In The Brazilian Amazon.

Authors:  Sabrina Sampaio Bandeira; Carla Avelar Pires; Juarez Antonio Simões Quaresma
Journal:  Infect Drug Resist       Date:  2019-10-17       Impact factor: 4.003

7.  Development of a questionnaire to determine the case detection delay of leprosy: A mixed-methods cultural validation study.

Authors:  Naomi D de Bruijne; Kedir Urgesa; Abraham Aseffa; Kidist Bobosha; Anne Schoenmakers; Robin van Wijk; Thomas Hambridge; Mitzi M Waltz; Christa Kasang; Liesbeth Mieras
Journal:  PLoS Negl Trop Dis       Date:  2022-01-13

8.  Factors Contributing to the Delay in Diagnosis and Continued Transmission of Leprosy in Brazil--An Explorative, Quantitative, Questionnaire Based Study.

Authors:  Mary Henry; Noêmi GalAn; Katherine Teasdale; Renata Prado; Harpreet Amar; Marina S Rays; Lesley Roberts; Pedro Siqueira; Gilles de Wildt; Marcos Virmond; Pranab K Das
Journal:  PLoS Negl Trop Dis       Date:  2016-03-15

9.  The Impact of a Rights-Based Counselling Intervention to Reduce Stigma in People Affected by Leprosy in Indonesia.

Authors:  Mimi Lusli; Ruth Peters; Wim van Brakel; Marjolein Zweekhorst; Sorana Iancu; Joske Bunders; Barbara Regeer
Journal:  PLoS Negl Trop Dis       Date:  2016-12-13

10.  Skin disease prevalence study in schoolchildren in rural Côte d'Ivoire: Implications for integration of neglected skin diseases (skin NTDs).

Authors:  Rie Roselyne Yotsu; Kouamé Kouadio; Bamba Vagamon; Konan N'guessan; Amari Jules Akpa; Aubin Yao; Julien Aké; Rigobert Abbet Abbet; Barbine Tchamba Agbor Agbor; Roger Bedimo; Norihisa Ishii; L Claire Fuller; Roderick Hay; Oriol Mitjà; Henning Drechsler; Kingsley Asiedu
Journal:  PLoS Negl Trop Dis       Date:  2018-05-17
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