Literature DB >> 14606328

What is a good death? Minority and non-minority perspectives.

Elizabeth Tong1, Sarah A McGraw, Edward Dobihal, Rosemary Baggish, Emily Cherlin, Elizabeth H Bradley.   

Abstract

While much attention has been directed at improving the quality of care at the end of life, few studies have examined what determines a good death in different individuals. We sought to identify common domains that characterize a good death in a diverse range of community-dwelling individuals, and to describe differences that might exist between minority and non-minority community-dwelling individuals' views. Using data from 13 focus groups, we identified 10 domains that characterize the quality of the death experience: 1) physical comfort, 2) burdens on family, 3) location and environment, 4) presence of others, 5) concerns regarding prolongation of life, 6) communication, 7) completion and emotional health, 8) spiritual care, 9) cultural concerns, 10) individualization. Differences in minority compared to non-minority views were apparent within the domains of spiritual concerns, cultural concerns, and individualization. The findings may help in efforts to encourage more culturally sensitive and humane end-of-life care for both minority and non-minority individuals.

Entities:  

Keywords:  Death and Euthanasia; Empirical Approach

Mesh:

Year:  2003        PMID: 14606328

Source DB:  PubMed          Journal:  J Palliat Care        ISSN: 0825-8597            Impact factor:   2.250


  7 in total

Review 1.  Control and end-of-life care: does ethnicity matter?

Authors:  Deborah L Volker
Journal:  Am J Hosp Palliat Care       Date:  2005 Nov-Dec       Impact factor: 2.500

2.  Advance Care Planning Outcomes in African Americans: An Empirical Look at the Trust Variable.

Authors:  Esther R Laury; Meredith MacKenzie-Greenle; Salimah Meghani
Journal:  J Palliat Med       Date:  2018-12-26       Impact factor: 2.947

Review 3.  Defining a Good Death (Successful Dying): Literature Review and a Call for Research and Public Dialogue.

Authors:  Emily A Meier; Jarred V Gallegos; Lori P Montross Thomas; Colin A Depp; Scott A Irwin; Dilip V Jeste
Journal:  Am J Geriatr Psychiatry       Date:  2016-01-22       Impact factor: 4.105

4.  What "best practice" could be in Palliative Care: an analysis of statements on practice and ethics expressed by the main Health Organizations.

Authors:  Gaia Barazzetti; Claudia Borreani; Guido Miccinesi; Franco Toscani
Journal:  BMC Palliat Care       Date:  2010-01-07       Impact factor: 3.234

5.  Can you hear me now? The experience of a deaf family member surrounding the death of loved ones.

Authors:  Karen A Kehl; Constance M Gartner
Journal:  Palliat Med       Date:  2009-11-12       Impact factor: 4.762

6.  The end-of-life experience in long-term care: five themes identified from focus groups with residents, family members, and staff.

Authors:  Jean C Munn; Debra Dobbs; Andrea Meier; Christianna S Williams; Holly Biola; Sheryl Zimmerman
Journal:  Gerontologist       Date:  2008-08

7.  'Burden to others' as a public concern in advanced cancer: a comparative survey in seven European countries.

Authors:  Claudia Bausewein; Natalia Calanzani; Barbara A Daveson; Steffen T Simon; Pedro L Ferreira; Irene J Higginson; Dorothee Bechinger-English; Luc Deliens; Marjolein Gysels; Franco Toscani; Lucas Ceulemans; Richard Harding; Barbara Gomes
Journal:  BMC Cancer       Date:  2013-03-08       Impact factor: 4.430

  7 in total

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