Literature DB >> 145917

Parents of Down's syndrome babies: their early needs.

C C Cunningham, T Sloper.   

Abstract

The paper reports the results of detailed interviews with parents of Down's syndrome infants shortly after their being informed of the diagnosis. It reviews previous studies and confirms a number of findings. 1. The majority of parents wish to be told of the diagnosis as soon as possible and with the spouse present. 2. They do not automatically resent the 'teller'. 3. They wish to be told directly but sympathetically, in private and have access to the baby. 4. Several interviews are needed at short intervals following the initial telling for parents to ask further questions and to assimilate more information about their child's condition.

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Year:  1977        PMID: 145917     DOI: 10.1111/j.1365-2214.1977.tb00056.x

Source DB:  PubMed          Journal:  Child Care Health Dev        ISSN: 0305-1862            Impact factor:   2.508


  2 in total

1.  Adoption and fostering of babies with Down syndrome: a cohort of 593 cases.

Authors:  A C Dumaret; C De Vigan; C Julian-Reynier; J Goujard; D Rosset; S Aymé
Journal:  Prenat Diagn       Date:  1998-05       Impact factor: 3.050

2.  Pakistani mothers' and fathers' experiences and understandings of the diagnosis of Down syndrome for their child.

Authors:  Kiran Jan Ahmed; Mushtaq Ahmed; Hussain S Jafri; Yasmin Raashid; Shenaz Ahmed
Journal:  J Community Genet       Date:  2014-08-01
  2 in total

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