Literature DB >> 14518581

Access to health services in Ireland for people with Multiple Sclerosis and Motor Neurone Disease.

O Hardiman1, B Corr, E Frost, P Gibbons, L Mahon, B J Traynor.   

Abstract

We conducted a telephone questionnaire to determine the utilisation of hospital and community based services by patients with Motor Neurone Disease and Multiple Sclerosis in Ireland. 94 MND and 188 MS patients participated in the study. MND patients were more likely to have free medical care than MS patients, despite legislation favouring the converse. Severely disabled MND patients were more successful at accessing free community-based services than were severely disabled MS patients. Private medical insurance conferred no advantage when obtaining services or purchasing equipment. Many patients were unaware of the specific roles of the various clinical professionals. There are significant deficiencies in patients' ability to access multidisciplinary services. Voluntary organisations often bridge the gap in service provision. An investment in services for people with chronic neurological disability is urgently required.

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Year:  2003        PMID: 14518581

Source DB:  PubMed          Journal:  Ir Med J        ISSN: 0332-3102


  1 in total

1.  Identification and outcomes of clinical phenotypes in amyotrophic lateral sclerosis/motor neuron disease: Australian National Motor Neuron Disease observational cohort.

Authors:  Paul Talman; Thi Duong; Steve Vucic; Susan Mathers; Svetha Venkatesh; Robert Henderson; Dominic Rowe; David Schultz; Robert Edis; Merrilee Needham; Richard Macdonnell; Pamela McCombe; Carol Birks; Matthew Kiernan
Journal:  BMJ Open       Date:  2016-09-30       Impact factor: 2.692

  1 in total

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