Sharon F Terry1. Show Affiliations » 1. Genetic Alliance, USA. sterry@pxe.org
Abstract
Mesh: See more » Anecdotes as TopicChildCommunity ParticipationFoundations/organization & administrationGenetic ResearchHealth EducationHumansInformation DisseminationInterinstitutional RelationsLearningPatient AdvocacyProfessional-Family RelationsPseudoxanthoma Elasticum/complicationsPseudoxanthoma Elasticum/geneticsResearch Support as TopicSelf-Help GroupsTissue Banks/organization & administration
Year: 2003 PMID: 14515892 DOI: 10.1377/hlthaff.22.5.166
Source DB: PubMed Journal: Health Aff (Millwood) ISSN: 0278-2715 Impact factor: 6.301