Literature DB >> 14512961

Risk communication strategies: state of the art and effectiveness in the context of cancer genetic services.

Claire Julian-Reynier1, Myriam Welkenhuysen, Lea Hagoel, Marleen Decruyenaere, Penelope Hopwood.   

Abstract

The objective of this paper is first to describe the different strategies used to communicate risks to patients in the field of cancer or genetics, to review their effectiveness, and to summarise the state of the art of this practice in particular, in cancer genetics. The target audience is health care professionals involved in the communication of cancer risks, and genetic risks of breast/ovarian or colorectal cancer in particular. The methods include a review of the literature (Medline, Pascal, PsycInfo, Embase) by a panel of researchers and clinicians (cancer geneticists, epidemiologists, health psychologists, sociologists) in the context of a European Project on risk communication. We highlight practices that have been shown to be effective in the context of health psychology research and those being still under consideration for use in routine practice. In conclusion, this paper adds clinical relevance to the research evidence. We propose specific steps that could be integrated in standard clinical practice based on current evidence for their usefulness/effectiveness.

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Year:  2003        PMID: 14512961     DOI: 10.1038/sj.ejhg.5201037

Source DB:  PubMed          Journal:  Eur J Hum Genet        ISSN: 1018-4813            Impact factor:   4.246


  30 in total

Review 1.  Information processing in the context of genetic risk: implications for genetic-risk communication.

Authors:  Holly Etchegary; Colin Perrier
Journal:  J Genet Couns       Date:  2007-05-01       Impact factor: 2.537

Review 2.  Communicating genetic risk information for common disorders in the era of genomic medicine.

Authors:  Denise M Lautenbach; Kurt D Christensen; Jeffrey A Sparks; Robert C Green
Journal:  Annu Rev Genomics Hum Genet       Date:  2013       Impact factor: 8.929

3.  Explaining Mendelian inheritance in genetic consultations: an IPR study of counselor and counselee experiences.

Authors:  Theodora Gale; Sara Pasalodos-Sanchez; Lauren Kerzin-Storrar; Georgina Hall; Rhona MacLeod
Journal:  J Genet Couns       Date:  2010-01-05       Impact factor: 2.537

Review 4.  Family Communication, Risk Perception and Cancer Knowledge of Young Adults from BRCA1/2 Families: a Systematic Review.

Authors:  Alison L Young; Phyllis N Butow; Janine Vetsch; Veronica F Quinn; Andrea F Patenaude; Katherine M Tucker; Claire E Wakefield
Journal:  J Genet Couns       Date:  2017-06-30       Impact factor: 2.537

5.  Utilization of clinical genetic counseling among childhood and young adult cancer survivors in a registry trial.

Authors:  Nassim Anderson; Arash Delavar; Danielle Novetsky Friedman; Vijai Joseph; Nidha Mubdi; Kevin C Oeffinger; Charles A Sklar; Kenneth Offit; Matthew Matasar; Nirupa Raghunathan; Zoltan Antal; David Straus; Michael Walsh; Alicia Latham; Emily S Tonorezos
Journal:  J Community Genet       Date:  2020-07-16

6.  Communication of pharmacogenetic research results to HIV-infected treated patients: standpoints of professionals and patients.

Authors:  Grégoire Moutel; Nathalie Duchange; François Raffi; Lama I Sharara; Ioannis Théodorou; Violaine Noël; Sandrine de Montgolfier; Ingrid Callies; François Bricaire; Christian Hervé; Catherine Leport
Journal:  Eur J Hum Genet       Date:  2005-09       Impact factor: 4.246

7.  A focus group study on breast cancer risk presentation: one format does not fit all.

Authors:  Michel Dorval; Karine Bouchard; Jocelyne Chiquette; Gord Glendon; Christine M Maugard; Wilhelm Dubuisson; Seema Panchal; Jacques Simard
Journal:  Eur J Hum Genet       Date:  2012-11-21       Impact factor: 4.246

8.  Disclosure of APOE genotype for risk of Alzheimer's disease.

Authors:  Robert C Green; J Scott Roberts; L Adrienne Cupples; Norman R Relkin; Peter J Whitehouse; Tamsen Brown; Susan LaRusse Eckert; Melissa Butson; A Dessa Sadovnick; Kimberly A Quaid; Clara Chen; Robert Cook-Deegan; Lindsay A Farrer
Journal:  N Engl J Med       Date:  2009-07-16       Impact factor: 91.245

9.  A Counselling Model for BRCA1/2 Genetic Susceptibility Testing.

Authors:  Iris van Oostrom; Aad Tibben
Journal:  Hered Cancer Clin Pract       Date:  2004-02-15       Impact factor: 2.857

10.  Risk perception after genetic counseling in patients with increased risk of cancer.

Authors:  Johanna Rantala; Ulla Platten; Gunilla Lindgren; Bo Nilsson; Brita Arver; Annika Lindblom; Yvonne Brandberg
Journal:  Hered Cancer Clin Pract       Date:  2009-08-23       Impact factor: 2.857

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