BACKGROUND AND OBJECTIVES: Health status measures, used to measure the subjective functioning and well-being of respondents, are increasingly being used in trials of treatments that are undertaken in a variety of countries. To assess comparability of results gained from such cross-cultural studies, it is important for researchers to know the comparability of instruments across cultures. One measure widely used in cross-cultural studies is the Parkinson's Disease Questionnaire (PDQ-39). We evaluated response rate, data quality, score reliability, and scaling assumptions of the instrument in the United States, Canada, Spain, Italy, and Japan. METHODS: Our data were gained from the Global Parkinson's Disease Survey, a cross-national survey, in which the PDQ-39 was interviewer administered to respondents. RESULTS: Our data suggest that the PDQ-39 is, for the most part, a valid and reliable measure that can be appropriately and meaningfully used in cross-cultural studies. However, one of the dimensions of the measure, Social Support, may not be sufficiently reliable to be used as a primary endpoint in trials. CONCLUSION: The PDQ-39 seems to be sufficiently robust to be used in trials and surveys in cross-cultural studies.
BACKGROUND AND OBJECTIVES: Health status measures, used to measure the subjective functioning and well-being of respondents, are increasingly being used in trials of treatments that are undertaken in a variety of countries. To assess comparability of results gained from such cross-cultural studies, it is important for researchers to know the comparability of instruments across cultures. One measure widely used in cross-cultural studies is the Parkinson's Disease Questionnaire (PDQ-39). We evaluated response rate, data quality, score reliability, and scaling assumptions of the instrument in the United States, Canada, Spain, Italy, and Japan. METHODS: Our data were gained from the Global Parkinson's Disease Survey, a cross-national survey, in which the PDQ-39 was interviewer administered to respondents. RESULTS: Our data suggest that the PDQ-39 is, for the most part, a valid and reliable measure that can be appropriately and meaningfully used in cross-cultural studies. However, one of the dimensions of the measure, Social Support, may not be sufficiently reliable to be used as a primary endpoint in trials. CONCLUSION: The PDQ-39 seems to be sufficiently robust to be used in trials and surveys in cross-cultural studies.
Authors: Karl Kieburtz; Barbara C Tilley; Jordan J Elm; Debra Babcock; Robert Hauser; G Webster Ross; Alicia H Augustine; Erika U Augustine; Michael J Aminoff; Ivan G Bodis-Wollner; James Boyd; Franca Cambi; Kelvin Chou; Chadwick W Christine; Michelle Cines; Nabila Dahodwala; Lorelei Derwent; Richard B Dewey; Katherine Hawthorne; David J Houghton; Cornelia Kamp; Maureen Leehey; Mark F Lew; Grace S Lin Liang; Sheng T Luo; Zoltan Mari; John C Morgan; Sotirios Parashos; Adriana Pérez; Helen Petrovitch; Suja Rajan; Sue Reichwein; Jessie Tatsuno Roth; Jay S Schneider; Kathleen M Shannon; David K Simon; Tanya Simuni; Carlos Singer; Lewis Sudarsky; Caroline M Tanner; Chizoba C Umeh; Karen Williams; Anne-Marie Wills Journal: JAMA Date: 2015-02-10 Impact factor: 56.272
Authors: Danny Bega; Sheng Luo; Hubert Fernandez; Kelvin Chou; Michael Aminoff; Sotirios Parashos; Harrison Walker; David S Russell; Chadwick W Christine; Rohit Dhall; Carlos Singer; Ivan Bodis-Wollner; Robert Hamill; Daniel Truong; Zoltan Mari; Sofya Glazmann; Meilin Huang; Emily Houston; Tanya Simuni Journal: Mov Disord Clin Pract Date: 2015-07-14
Authors: Pablo Martinez-Martin; Marcos Serrano-Dueñas; Maria João Forjaz; Maria Soledad Serrano Journal: Qual Life Res Date: 2007-05-30 Impact factor: 4.147