Literature DB >> 12959418

Measuring the parental, service and cost impacts of children with autistic spectrum disorder: a pilot study.

Krister Järbrink1, Eric Fombonne, Martin Knapp.   

Abstract

The aim of this study was to carry out a preliminary examination of a research instrument developed specifically to collect cost information for individuals with autistic spectrum disorder. There is very little cost information on children or adults with autism or autism-related disorder, and no study appears to have carried out a specific cost collection in this area. Although some global cost estimates can be made, little is known about the cost implications of parental burden. By using different techniques to collect indirect costs, the study outlines a functional methodology. Results from this small pilot study point to considerable economic burden for parents and give some indication of the associated costs of autistic spectrum disorder.

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Year:  2003        PMID: 12959418     DOI: 10.1023/a:1025058711465

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  10 in total

1.  Benefit-cost analysis and autism services: a response to Jacobson and Mulick.

Authors:  L M Marcus; J S Rubin; M A Rubin
Journal:  J Autism Dev Disord       Date:  2000-12

2.  Supporting young adults with hemiplegia: services and costs.

Authors:  J Beecham; T O'Neill; R Goodman
Journal:  Health Soc Care Community       Date:  2001-01

Review 3.  Estimating the costs of informal care for people with Alzheimer's disease: methodological and practical challenges.

Authors:  D McDaid
Journal:  Int J Geriatr Psychiatry       Date:  2001-04       Impact factor: 3.485

4.  Comparing patterns and costs of schizophrenia care in five European countries: the EPSILON study. European Psychiatric Services: Inputs Linked to Outcome Domains and Needs.

Authors:  Martin Knapp; Daniel Chisholm; Morven Leese; Francesco Amaddeo; Michele Tansella; Aart Schene; Graham Thornicroft; Jose-Luis Vazquez-Barquero; Helle-Charlotte Knudsen; Thomas Becker
Journal:  Acta Psychiatr Scand       Date:  2002-01       Impact factor: 6.392

5.  Burden on the families of patients with schizophrenia: results of the BIOMED I study.

Authors:  L Magliano; G Fadden; M Madianos; J M de Almeida; T Held; M Guarneri; C Marasco; P Tosini; M Maj
Journal:  Soc Psychiatry Psychiatr Epidemiol       Date:  1998-09       Impact factor: 4.328

6.  Measuring morbidity of children in the community: a comparison of interview and diary data.

Authors:  M A Bruijnzeels; M Foets; J C van der Wouden; A Prins; W J van den Heuvel
Journal:  Int J Epidemiol       Date:  1998-02       Impact factor: 7.196

7.  On the importance of helping families: policy implications from a national study.

Authors:  A Birenbaum; H J Cohen
Journal:  Ment Retard       Date:  1993-04

8.  The economic impact of autism in Britain.

Authors:  K Järbrink; M Knapp
Journal:  Autism       Date:  2001-03

Review 9.  Practitioner review: psychological and educational treatments for autism.

Authors:  P Howlin
Journal:  J Child Psychol Psychiatry       Date:  1998-03       Impact factor: 8.982

10.  Costs of family care for adults with mental retardation and related developmental disabilities.

Authors:  G T Fujiura; J A Roccoforte; D Braddock
Journal:  Am J Ment Retard       Date:  1994-11
  10 in total
  39 in total

Review 1.  Cost-of-illness studies : a review of current methods.

Authors:  Ebere Akobundu; Jing Ju; Lisa Blatt; C Daniel Mullins
Journal:  Pharmacoeconomics       Date:  2006       Impact factor: 4.981

2.  Types of Services and Costs of Programs for Preschoolers with Autism Spectrum Disorder Across Sectors: A Comparison of Two Canadian Provinces.

Authors:  Kate Tsiplova; Wendy J Ungar; Helen E Flanagan; Jeffrey den Otter; Charlotte Waddell; Patricia Murray; Barbara D'Entremont; Natalie Léger; Nancy Garon; Susan Bryson; Isabel M Smith
Journal:  J Autism Dev Disord       Date:  2019-06

3.  Health care expenditures for children with autism spectrum disorders in Medicaid.

Authors:  Li Wang; Douglas L Leslie
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  2010-11       Impact factor: 8.829

4.  The cost-effectiveness of expanding intensive behavioural intervention to all autistic children in Ontario: in the past year, several court cases have been brought against provincial governments to increase funding for Intensive Behavioural Intervention (IBI). This economic evaluation examines the costs and consequences of expanding an IBI program.

Authors:  Sanober S Motiwala; Shamali Gupta; Meredith B Lilly; Wendy J Ungar; Peter C Coyte
Journal:  Healthc Policy       Date:  2006-01

5.  Time demands of caring for children with autism: what are the implications for maternal mental health?

Authors:  Michael G Sawyer; Michael Bittman; Annette M La Greca; Angela D Crettenden; Taylor F Harchak; Jon Martin
Journal:  J Autism Dev Disord       Date:  2010-05

6.  Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households.

Authors:  Tomomi McAuliffe; Reinie Cordier; Sharmila Vaz; Yvonne Thomas; Torbjorn Falkmer
Journal:  J Autism Dev Disord       Date:  2017-10

7.  Variation in socio-economic burden for caring of children with autism spectrum disorder in Oman: caregiver perspectives.

Authors:  Yahya M Al-Farsi; Mostafa I Waly; Marwan M Al-Sharbati; Mohamed Al-Shafaee; Omar Al-Farsi; Samiya Al-Fahdi; Allal Ouhtit; Maha Al-Khaduri; Samir Al-Adawi
Journal:  J Autism Dev Disord       Date:  2013-05

8.  Medicaid expenditures for children with autistic spectrum disorders: 1994 to 1999.

Authors:  David S Mandell; Jun Cao; Richard Ittenbach; Jennifer Pinto-Martin
Journal:  J Autism Dev Disord       Date:  2006-05

Review 9.  Management of psychiatric disorders in children and adolescents with atypical antipsychotics: a systematic review of published clinical trials.

Authors:  Peter S Jensen; Jan Buitelaar; Gahan J Pandina; Carin Binder; Magali Haas
Journal:  Eur Child Adolesc Psychiatry       Date:  2006-10-30       Impact factor: 4.785

10.  Brief report: Quantifying the impact of autism coverage on private insurance premiums.

Authors:  James N Bouder; Stuart Spielman; David S Mandell
Journal:  J Autism Dev Disord       Date:  2009-02-13
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