Literature DB >> 12953123

The birth of a child with disability. Coping by parents and siblings.

Isack Kandel1, Joav Merrick.   

Abstract

When a child is born, the life of the family changes significantly and each of its members must adapt to the new situation. When the child is born with a disability, in addition to regular adaptation, the family must cope with stress, grief, disappointments, and challenges, which may lead to a serious crisis or even disruption of family life. Parents must coordinate assessments, evaluations, and various treatments while maintaining contact with many professionals and numerous institutions or services. They find themselves faced with important decisions on behalf of the child, decisions on management of the child with disability, and economic decisions that will affect the whole family. This paper reviews the literature on the topic of coping when a child with disability is born and also studies the question as to whether a connection exists between parental orientation toward feelings of guilt and the family relationships system. The event of a child born with a disability is always a tragedy for the family, but early intervention and support may help the family to adjust and become positively involved in the care and development of the child, even if that child is different and in need of special treatment.

Entities:  

Mesh:

Year:  2003        PMID: 12953123      PMCID: PMC5974612          DOI: 10.1100/tsw.2003.63

Source DB:  PubMed          Journal:  ScientificWorldJournal        ISSN: 1537-744X


  5 in total

1.  Parental needs among children with birth defects: defining a parent-to-parent support network.

Authors:  A M Mathiesen; C J Frost; K M Dent; M L Feldkamp
Journal:  J Genet Couns       Date:  2012-07-24       Impact factor: 2.537

2.  Comparative Analysis of the Quality of Life in Families with Children or Adolescents Having Congenital versus Acquired Neuropathology.

Authors:  Maria V Morcov; Liliana Pădure; Cristian G Morcov; Andrada Mirea; Marian Ghiță; Gelu Onose
Journal:  Children (Basel)       Date:  2022-05-12

3.  Mental health outcomes and experiences of family caregivers of children with disabilities during the COVID-19 pandemic in Bolivia.

Authors:  Guido G Urizar; Ivonne Ramírez; Brianna I Caicedo; Cindy Mora
Journal:  J Community Psychol       Date:  2021-11-29

4.  Parents' Perceptions Regarding the Implementation of a Physical Therapy Stimulation Program for Children with Disabilities in Bolivia: A Qualitative Study.

Authors:  Sagrario Pérez-de la Cruz; Ivonne Ramírez
Journal:  Int J Environ Res Public Health       Date:  2020-09-03       Impact factor: 3.390

5.  The Association between Depression and Perceived Stress among Parents of Autistic and Non-Autistic Children-The Role of Loneliness.

Authors:  Kasper Sipowicz; Tadeusz Pietras; Marlena Podlecka; Łukasz Mokros
Journal:  Int J Environ Res Public Health       Date:  2022-03-04       Impact factor: 3.390

  5 in total

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