Literature DB >> 12841303

Psychologic factors in scleroderma.

Jennifer A Haythornthwaite1, Leslie J Heinberg, Lynanne McGuire.   

Abstract

CB interventions have been shown to reduce pain and improve psychosocial functioning in patients who have chronic illnesses, particularly chronically painful rheumatologic syndromes. These interventions are typically administered by specially trained professionals and are conducted during weekly individual or group sessions. When focused on pain and chronic illness, these interventions seem to have, at best, small effects on depression. Data from the headache literature and recent data about patients who have dental/facial pain indicate that minimal-contact CB therapy, the combination of some professional contact with audiotaped and written materials, may reduce pain in many patients, but the impact on functioning is less clear. Future studies should examine the impact of CB interventions on pain, depression, concerns about disfigurement, and physical and psychosocial functioning in scleroderma. Such knowledge is necessary for the optimal care of persons who have this debilitating illness. Although complicated, the advent of disease-specific interventions that are administered by way of the Internet may prove particularly useful in a rare illness, such as scleroderma. Psychologic factors with demonstrated relevance to scleroderma include pain, depression, and distress about disfigurement, physical function, and social function. Although these dimensions of quality of life are interrelated, pain, depression, and distress about disfigurement are common and may respond to psychologic interventions.

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Mesh:

Year:  2003        PMID: 12841303     DOI: 10.1016/s0889-857x(03)00020-6

Source DB:  PubMed          Journal:  Rheum Dis Clin North Am        ISSN: 0889-857X            Impact factor:   2.670


  25 in total

1.  The association of body image dissatisfaction and pain with reduced sexual function in women with systemic sclerosis.

Authors:  Ruby Knafo; Jennifer A Haythornthwaite; Leslie Heinberg; Fredrick M Wigley; Brett D Thombs
Journal:  Rheumatology (Oxford)       Date:  2011-01-27       Impact factor: 7.580

Review 2.  My approach to the treatment of scleroderma.

Authors:  Ami A Shah; Fredrick M Wigley
Journal:  Mayo Clin Proc       Date:  2013-04       Impact factor: 7.616

3.  Feasibility and construct validity of PROMIS and "legacy" instruments in an academic scleroderma clinic.

Authors:  Dinesh Khanna; Paul Maranian; Nan Rothrock; David Cella; Richard Gershon; Puja P Khanna; Brennan Spiegel; Daniel E Furst; Phil J Clements; Amber Bechtel; Ron D Hays
Journal:  Value Health       Date:  2011-10-22       Impact factor: 5.725

4.  New directions for patient-centred care in scleroderma: the Scleroderma Patient-centred Intervention Network (SPIN).

Authors:  Brett D Thombs; Lisa R Jewett; Shervin Assassi; Murray Baron; Susan J Bartlett; Angela Costa Maia; Ghassan El-Baalbaki; Daniel E Furst; Karen Gottesman; Jennifer A Haythornthwaite; Marie Hudson; Ann Impens; Annett Korner; Catarina Leite; Maureen D Mayes; Vanessa L Malcarne; Sarosh J Motivala; Luc Mouthon; Warren R Nielson; Diane Plante; Serge Poiraudeau; Janet L Poole; Janet Pope; Maureen Sauve; Russell J Steele; Maria E Suarez-Almazor; Suzanne Taillefer; Cornelia H van den Ende; Erin Arthurs; Marielle Bassel; Vanessa Delisle; Katherine Milette; Allison Leavens; Ilya Razykov; Dinesh Khanna
Journal:  Clin Exp Rheumatol       Date:  2012-05-29       Impact factor: 4.473

5.  Malnutrition, associated clinical factors, and depression in systemic sclerosis: a cross-sectional study.

Authors:  İpek Türk; Nihan Cüzdan; Volkan Çiftçi; Didem Arslan; Muharrem Cem Doğan; İlker Unal
Journal:  Clin Rheumatol       Date:  2019-05-26       Impact factor: 2.980

6.  Illness Identity in Adults with a Chronic Illness.

Authors:  Leen Oris; Koen Luyckx; Jessica Rassart; Liesbet Goubert; Eva Goossens; Silke Apers; Seher Arat; Joris Vandenberghe; René Westhovens; Philip Moons
Journal:  J Clin Psychol Med Settings       Date:  2018-12

7.  Performance of the Patient-Reported Outcomes Measurement Information System-29 in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort Study.

Authors:  Linda Kwakkenbos; Brett D Thombs; Dinesh Khanna; Marie-Eve Carrier; Murray Baron; Daniel E Furst; Karen Gottesman; Frank van den Hoogen; Vanessa L Malcarne; Maureen D Mayes; Luc Mouthon; Warren R Nielson; Serge Poiraudeau; Robert Riggs; Maureen Sauvé; Fredrick Wigley; Marie Hudson; Susan J Bartlett
Journal:  Rheumatology (Oxford)       Date:  2017-08-01       Impact factor: 7.580

Review 8.  (Not) talking about sex: a systematic comparison of sexual impairment in women with systemic sclerosis and other chronic disease samples.

Authors:  Ruby Knafo; Brett D Thombs; Lisa Jewett; Marie Hudson; Fred Wigley; Jennifer A Haythornthwaite
Journal:  Rheumatology (Oxford)       Date:  2009-08-19       Impact factor: 7.580

9.  Assessment of depressive symptoms during post-transplant follow-up care performed via telehealth.

Authors:  Denise A Thompson; Renata Leimig; Gayle Gower; Rebecca P Winsett
Journal:  Telemed J E Health       Date:  2009-09       Impact factor: 3.536

10.  Sleep quality in patients with systemic sclerosis: relationship between the clinical variables, depressive symptoms, functional status, and the quality of life.

Authors:  Mustafa Akif Sariyildiz; Ibrahim Batmaz; Mahmut Budulgan; Mehtap Bozkurt; Levent Yazmalar; Ahmet Inanir; Tahsin Celepkolu; Remzi Çevik
Journal:  Rheumatol Int       Date:  2013-01-31       Impact factor: 2.631

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