Literature DB >> 12796437

Brain donation for schizophrenia research: gift, consent, and meaning.

M Boyes1, P Ward.   

Abstract

The Neuroscience Institute of Schizophrenia and Allied Disorders's (NISAD) "Gift of Hope" Tissue Donor Program is a volunteer programme for people who wish to donate their brain when they die for neuroscience research into schizophrenia. Organ donation for purposes of research differs from transplant donation in a number of ways, most notably the absence of a single recipient. Within a particular community, however, (people with schizophrenia and their carers) the single recipient is replaced by a sense of shared experience and preventing suffering in others. Donors have an investment in the research.

Entities:  

Keywords:  Biomedical and Behavioral Research

Mesh:

Year:  2003        PMID: 12796437      PMCID: PMC1733720          DOI: 10.1136/jme.29.3.165

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  5 in total

1.  Biotechnology and monstrosity. Why we should pay attention to the "yuk factor".

Authors:  M Midgley
Journal:  Hastings Cent Rep       Date:  2000 Sep-Oct       Impact factor: 2.683

2.  Decisional capacity for informed consent in schizophrenia research.

Authors:  W T Carpenter; J M Gold; A C Lahti; C A Queern; R R Conley; J J Bartko; J Kovnick; P S Appelbaum
Journal:  Arch Gen Psychiatry       Date:  2000-06

3.  The brain-mind quiddity: ethical issues in the use of human brain tissue for therapeutic and scientific purposes.

Authors:  L Burd; J M Gregory; J Kerbeshian
Journal:  J Med Ethics       Date:  1998-04       Impact factor: 2.903

4.  The need of a consensus for brain banking.

Authors:  F F Cruz-Sánchez; E Tolosa
Journal:  J Neural Transm Suppl       Date:  1993

5.  My body, my property.

Authors:  L B Andrews
Journal:  Hastings Cent Rep       Date:  1986-10       Impact factor: 2.683

  5 in total
  5 in total

1.  Legal and Ethical Issues in Brain Banking.

Authors:  Inge Huitinga; Mignon de Goeij; Natasja Klioueva
Journal:  Neurosci Bull       Date:  2018-11-03       Impact factor: 5.203

Review 2.  Banking brains: a pre-mortem "how to" guide to successful donation.

Authors:  Daniel Trujillo Diaz; Nora C Hernandez; Etty P Cortes; Phyllis L Faust; Jean Paul G Vonsattel; Elan D Louis
Journal:  Cell Tissue Bank       Date:  2018-09-15       Impact factor: 1.522

3.  Why people donate their brain to science: a systematic review.

Authors:  Meng-Jiun Penny Lin; Tanisha Jowsey; Maurice A Curtis
Journal:  Cell Tissue Bank       Date:  2019-09-19       Impact factor: 1.522

4.  Promise and challenges of dystonia brain banking: establishing a human tissue repository for studies of X-Linked Dystonia-Parkinsonism.

Authors:  Cara Fernandez-Cerado; G Paul Legarda; M Salvie Velasco-Andrada; Abegail Aguil; Niecy G Ganza-Bautista; J Benedict B Lagarde; Jasmin Soria; Roland Dominic G Jamora; Patrick J Acuña; Charles Vanderburg; Ellen Sapp; Marian DiFiglia; Micaela G Murcar; Lindsey Campion; Laurie J Ozelius; Amy K Alessi; Malvindar K Singh-Bains; Henry J Waldvogel; Richard L M Faull; Regina Macalintal-Canlas; Edwin L Muñoz; Ellen B Penney; Mark A Ang; Cid Czarina E Diesta; D Cristopher Bragg; Geraldine Acuña-Sunshine
Journal:  J Neural Transm (Vienna)       Date:  2021-01-13       Impact factor: 3.575

5.  A qualitative study exploring the process of postmortem brain tissue donation after suicide.

Authors:  Carolina Stopinski Padoan; Lucas França Garcia; Kleber Cardoso Crespo; Vanessa Kenne Longaray; Murilo Martini; Júlia Camargo Contessa; Flávio Kapczinski; Francine Hehn de Oliveira; José Roberto Goldim; Pedro Vs Magalhães
Journal:  Sci Rep       Date:  2022-03-18       Impact factor: 4.379

  5 in total

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