Literature DB >> 12791484

The new genetics and its consequences for family, kinship, medicine and medical genetics.

Kaja Finkler1, Cécile Skrzynia, James P Evans.   

Abstract

In the past several decades there has been an explosion in our understanding of genetics. The new genetics is an integral part of contemporary biomedicine and promises great advances in alleviating disease, prolonging human life and leading us unto the medicine of the future. The aim of this paper is to explore the ways in which people make sense of the uncertainties that are associated with the new genetics, which by definition involve family and kinship relations. We explore the degree to which medical genetics places the patient in a double bind between the qualitative certainty and quantitative uncertainty of genetic inheritance that reinforce notions both of fear, and control of a person's future health. Second, we propose that the new genetics has medicalized family and kinship creating profound ethical and practical dilemmas for both the individual and for medicine as a whole.

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Year:  2003        PMID: 12791484     DOI: 10.1016/s0277-9536(02)00365-9

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  14 in total

1.  Agency and choice in genetic counseling: Acknowledging patients' concerns.

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2.  Family Communication in Inherited Cardiovascular Conditions in Ireland.

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Journal:  J Genet Couns       Date:  2016-06-08       Impact factor: 2.537

3.  Emergence of Diseases of Affluence in Oman: Where do they Feature in the Health Research Agenda?

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Journal:  Sultan Qaboos Univ Med J       Date:  2006-12

4.  Challenges for providing genetic counselling in Colombian genetic clinics: the viewpoint of the physicians providing genetic consultations.

Authors:  Clemencia Rodas-Pérez; Angus Clarke; John Powell; Margaret Thorogood
Journal:  J Community Genet       Date:  2015-06-19

5.  Preferences for genetic testing for colorectal cancer within a population-based screening program: a discrete choice experiment.

Authors:  Jorien Veldwijk; Mattijs S Lambooij; Frank G J Kallenberg; Henk J van Kranen; Annelien L Bredenoord; Evelien Dekker; Henriëtte A Smit; G Ardine de Wit
Journal:  Eur J Hum Genet       Date:  2015-06-03       Impact factor: 4.246

6.  "My funky genetics": BRCA1/2 mutation carriers' understanding of genetic inheritance and reproductive merger in the context of new reprogenetic technologies.

Authors:  Allison Werner-Lin; Lisa R Rubin; Maya Doyle; Rikki Stern; Katie Savin; Karen Hurley; Michal Sagi
Journal:  Fam Syst Health       Date:  2012-06       Impact factor: 1.950

7.  Understanding preventive behaviors among mid-Western African-American men: a pilot qualitative study of prostate screening.

Authors:  Idethia Shevon Harvey; Reginald J Alston
Journal:  J Mens Health       Date:  2011-05-01       Impact factor: 0.537

8.  Identifying the public's knowledge and intention to use human cloning in Greek urban areas.

Authors:  Georgia Tzamalouka; Pelagia Soultatou; Maria Papadakaki; Sevasti Chatzifotiou; Basil Tarlatzis; Joannes El Chliaoutakis
Journal:  J Assist Reprod Genet       Date:  2005-02       Impact factor: 3.412

9.  Informed decision making about predictive DNA tests: arguments for more public visibility of personal deliberations about the good life.

Authors:  Marianne Boenink; Simone van der Burg
Journal:  Med Health Care Philos       Date:  2010-05

10.  Psychiatric disorders in clinical genetics II: Individualizing recurrence risks.

Authors:  Jehannine C Austin; Christina G S Palmer; Beth Rosen-Sheidley; Patricia McCarthy Veach; Elizabeth Gettig; Holly L Peay
Journal:  J Genet Couns       Date:  2007-12-11       Impact factor: 2.537

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