Literature DB >> 12749679

Nonstigmatizing ways to engage HIV-positive African-American teens in mental health and support services: a commentary.

Maureen E Lyon, Kathy Woodward.   

Abstract

This commentary illustrates a hospital/adolescent-clinic based model for providing support services and for increasing medical adherence among HIV positive inner city African-American adolescents. This commentary reviews the racial/ethnic disparities in HIV disease among adolescents and describes a successful program model for overcoming stigma. Traditional support groups were rejected by youth with HIV/AIDS. Seven elements common to successful programs were identified. Successful programs built on designs described in the research literature. Focus groups composed of HIV-positive adolescents identified what they wanted and needed. Stigmatizing labels were avoided in naming programs. Practical barriers to access, such as transportation and childcare, were eliminated. Programs were skills oriented, culturally sensitive, and life affirming, focusing on healthy living. HIV-positive inner city African-American youth can be successfully recruited and engaged in hospital based programs. Although these programs were qualitatively evaluated by youth as successful and attrition was low and attendance averaged 50%, rigorous quantitative research is needed to evaluate the effectiveness of such programs. We need quantitative research to successfully advocate for government funding. Stigma needs to be addressed openly in public health. Future research is needed to evaluate interventions to overcome the health consequences of stigma on utilization of available medical and mental health services.

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Year:  2003        PMID: 12749679      PMCID: PMC2594413     

Source DB:  PubMed          Journal:  J Natl Med Assoc        ISSN: 0027-9684            Impact factor:   1.798


  11 in total

Review 1.  To mitigate, resist, or undo: addressing structural influences on the health of urban populations.

Authors:  A T Geronimus
Journal:  Am J Public Health       Date:  2000-06       Impact factor: 9.308

2.  Antiretroviral medication adherence among the REACH HIV-infected adolescent cohort in the USA.

Authors:  D A Murphy; C M Wilson; S J Durako; L R Muenz; M Belzer
Journal:  AIDS Care       Date:  2001-02

Review 3.  HIV risk in adolescents with severe mental illness: literature review.

Authors:  M D Smith
Journal:  J Adolesc Health       Date:  2001-11       Impact factor: 5.012

4.  Difficult life circumstances in HIV-infected adolescents: cause or effect?

Authors:  M E Lyon; T J Silber; L J D'Angelo
Journal:  AIDS Patient Care STDS       Date:  1997-02       Impact factor: 5.078

5.  Putting the illness in its place: discussion groups for families with chronic medical illnesses.

Authors:  S Gonzalez; P Steinglass; D Reiss
Journal:  Fam Process       Date:  1989-03

6.  Psychiatric issues in the management of patients with HIV infection.

Authors:  G J Treisman; A F Angelino; H E Hutton
Journal:  JAMA       Date:  2001-12-12       Impact factor: 56.272

7.  Psychiatric diagnoses in adolescents seropositive for the human immunodeficiency virus.

Authors:  M Pao; M Lyon; L J D'Angelo; W B Schuman; T Tipnis; D A Mrazek
Journal:  Arch Pediatr Adolesc Med       Date:  2000-03

8.  African Americans' views on research and the Tuskegee Syphilis Study.

Authors:  V S Freimuth; S C Quinn; S B Thomas; G Cole; E Zook; T Duncan
Journal:  Soc Sci Med       Date:  2001-03       Impact factor: 4.634

9.  HIV prevalence and associated risks in young men who have sex with men. Young Men's Survey Study Group.

Authors:  L A Valleroy; D A MacKellar; J M Karon; D H Rosen; W McFarland; D A Shehan; S R Stoyanoff; M LaLota; D D Celentano; B A Koblin; H Thiede; M H Katz; L V Torian; R S Janssen
Journal:  JAMA       Date:  2000-07-12       Impact factor: 56.272

10.  Disclosure of serostatus by HIV infected youth: the experience of the REACH study. Reaching for Excellence in Adolescent Care and Health.

Authors:  L J D'Angelo; S E Abdalian; M Sarr; N Hoffman; M Belzer
Journal:  J Adolesc Health       Date:  2001-09       Impact factor: 5.012

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  6 in total

1.  An exploratory survey of end-of-life attitudes, beliefs, and experiences of adolescents with HIV/AIDS and their families.

Authors:  Patricia A Garvie; Jianping He; Jichuan Wang; Lawrence J D'Angelo; Maureen E Lyon
Journal:  J Pain Symptom Manage       Date:  2012-07-07       Impact factor: 3.612

Review 2.  Suggested avenues to reduce the stigma of mental illness in the Middle East.

Authors:  Ahmed M Sewilam; Annie M M Watson; Ahmed M Kassem; Sue Clifton; Margaret C McDonald; Rebecca Lipski; Smita Deshpande; Hader Mansour; Vishwajit L Nimgaonkar
Journal:  Int J Soc Psychiatry       Date:  2014-06-23

3.  FAmily CEntered (FACE) advance care planning: Study design and methods for a patient-centered communication and decision-making intervention for patients with HIV/AIDS and their surrogate decision-makers.

Authors:  Allison L Kimmel; Jichuan Wang; Rachel K Scott; Linda Briggs; Maureen E Lyon
Journal:  Contemp Clin Trials       Date:  2015-06-02       Impact factor: 2.226

4.  Peer support groups as an intervention to decrease epilepsy-associated stigma.

Authors:  Melissa A Elafros; Julius Mulenga; Edward Mbewe; Alan Haworth; Elwyn Chomba; Masharip Atadzhanov; Gretchen L Birbeck
Journal:  Epilepsy Behav       Date:  2013-03-01       Impact factor: 2.937

5.  Development, feasibility, and acceptability of the Family/Adolescent-Centered (FACE) Advance Care Planning intervention for adolescents with HIV.

Authors:  Maureen E Lyon; Patricia A Garvie; Linda Briggs; Jianping He; Robert McCarter; Lawrence J D'Angelo
Journal:  J Palliat Med       Date:  2009-04       Impact factor: 2.947

6.  Is it safe? Talking to teens with HIV/AIDS about death and dying: a 3-month evaluation of Family Centered Advance Care (FACE) planning - anxiety, depression, quality of life.

Authors:  Maureen E Lyon; Patricia A Garvie; Linda Briggs; Jianping He; Robert Malow; Lawrence J D'Angelo; Robert McCarter
Journal:  HIV AIDS (Auckl)       Date:  2010-02-18
  6 in total

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