Literature DB >> 12745946

Getting the work done: a qualitative study of individuals with multiple sclerosis.

Kathryn M Yorkston1, Kurt Johnson, Estelle R Klasner, Dagmar Amtmann, Carrie M Kuehn, Brian Dudgeon.   

Abstract

THE PROBLEM: Work can be defined as an activity performed to accomplish something in the presence of obstacles that may make accomplishing the goal difficult. For individuals with MS, work is not only limited by physical impairments but also by factors such as fatigue and cognitive changes
PURPOSE: The aim of this study is to examine the experiences of individuals with mild to moderate MS as they carry out everyday work activities both inside and outside the home.
METHOD: Eleven women and three men were recruited from the community to participate in a series of semi-structured interviews. Using qualitative research methodology that examined the experiences of the participants, two major themes and seven subthemes emerged.
RESULTS: The first theme, Defining the work, included Priorities: seeing what's important; Plans: learning about resources and requirements; and PERSPECTIVES: fixing it yourself. The second theme, Changing how things get done, includes Precipitating factors; Awareness; Constructing the strategies; and Evaluating the strategies.
CONCLUSIONS: Individuals with MS develop strategies and utilize resources in order to get the work done. Comparisons are made between existing intervention theories or programmes and the experiences described by participants in this study.

Entities:  

Mesh:

Year:  2003        PMID: 12745946     DOI: 10.1080/0963828031000090506

Source DB:  PubMed          Journal:  Disabil Rehabil        ISSN: 0963-8288            Impact factor:   3.033


  10 in total

1.  Perspectives on self-management in multiple sclerosis: a focus group study.

Authors:  Elizabeth S Knaster; Kathryn M Yorkston; Kurt Johnson; Kara A McMullen; Dawn M Ehde
Journal:  Int J MS Care       Date:  2011

2.  Understanding Drivers of Employment Changes in a Multiple Sclerosis Population.

Authors:  Karin S Coyne; Audra N Boscoe; Brooke M Currie; Amanda S Landrian; Todd L Wandstrat
Journal:  Int J MS Care       Date:  2015 Sep-Oct

3.  The development of ICF Core Sets for multiple sclerosis: results of the International Consensus Conference.

Authors:  Michaela Coenen; Alarcos Cieza; Jenny Freeman; Fary Khan; Deborah Miller; Andrea Weise; Jürg Kesselring
Journal:  J Neurol       Date:  2011-03-04       Impact factor: 4.849

Review 4.  Economic burden of multiple sclerosis: a systematic review of the literature.

Authors:  Huseyin Naci; Rachael Fleurence; Julie Birt; Amy Duhig
Journal:  Pharmacoeconomics       Date:  2010       Impact factor: 4.981

5.  Variables associated with communicative participation in people with multiple sclerosis: a regression analysis.

Authors:  Carolyn Baylor; Kathryn Yorkston; Alyssa Bamer; Deanna Britton; Dagmar Amtmann
Journal:  Am J Speech Lang Pathol       Date:  2009-11-30       Impact factor: 2.408

6.  Multiple Sclerosis Questionnaire for Job Difficulties (MSQ-Job): definition of the cut-off score.

Authors:  Silvia Schiavolin; Ambra Mara Giovannetti; Matilde Leonardi; Greta Brenna; Laura Brambilla; Paolo Confalonieri; Rita Frangiamore; Renato Mantegazza; Marco Moscatelli; Valentina Torri Clerici; Francesca Cortese; Venusia Covelli; Michela Ponzio; Paola Zaratin; Alberto Raggi
Journal:  Neurol Sci       Date:  2016-02-03       Impact factor: 3.307

7.  Long-term epidemiology of multiple sclerosis in the Northern Seville District.

Authors:  Guillermo Izquierdo; Ana Venegas; Carmen Sanabria; Guillermo Navarro
Journal:  Acta Neurol Scand       Date:  2015-02-04       Impact factor: 3.209

8.  Economic burden of multiple sclerosis: a cross-sectional study in Iran.

Authors:  Mehdi Rezaee; Khosro Keshavarz; Sadegh Izadi; Abdosaleh Jafari; Ramin Ravangard
Journal:  Health Econ Rev       Date:  2022-01-03

9.  Work capacity and health-related quality of life among individuals with multiple sclerosis reduced by fatigue: a cross-sectional study.

Authors:  Gullvi Flensner; Anne-Marie Landtblom; Olle Söderhamn; Anna-Christina Ek
Journal:  BMC Public Health       Date:  2013-03-15       Impact factor: 3.295

10.  Changes in disability in people with multiple sclerosis: a 10-year prospective study.

Authors:  David Conradsson; Charlotte Ytterberg; Lena von Koch; Sverker Johansson
Journal:  J Neurol       Date:  2017-11-20       Impact factor: 4.849

  10 in total

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