Literature DB >> 12728835

Giving voice to persons living with dementia: the researcher's opportunities and challenges.

Theresa F Moore1, Jane Hollett.   

Abstract

Few qualitative studies have examined the experiences of persons living with dementia and little has been written about the opportunities and challenges for the researchers. This article challenges the assumption of dwindling personhood among persons with dementia. Methodological challenges which may be encountered by qualitative researchers are outlined and specific strategies for addressing these challenges are described including: modifying consent/assent procedures, adjusting sample size, facilitating communication, and making the most of the data.

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Year:  2003        PMID： 12728835     DOI： 10.1177/0894318403251793251793

Source DB:  PubMed          Journal:  Nurs Sci Q        ISSN： 0894-3184            Impact factor:   0.883


  11 in total

1.  Using spirituality to cope with early-stage Alzheimer's disease.

Authors:  Linda Beuscher; Victoria T Grando
Journal:  West J Nurs Res       Date:  2009-03-11       Impact factor: 1.967

2.  Challenges in conducting qualitative research with individuals with dementia.

Authors:  Linda Beuscher; Victoria T Grando
Journal:  Res Gerontol Nurs       Date:  2009-01       Impact factor: 1.571

3.  Procedure versus process: ethical paradigms and the conduct of qualitative research.

Authors:  Kristian Pollock
Journal:  BMC Med Ethics       Date:  2012-09-27       Impact factor: 2.652

4.  Methods and approaches for enhancing communication with people with moderate-to-severe dementia that can facilitate their inclusion in research and service evaluation: Findings from the IDEAL programme.

Authors:  Rachel Collins; Anna Hunt; Catherine Quinn; Anthony Martyr; Claire Pentecost; Linda Clare
Journal:  Dementia (London)       Date:  2022-02-13

5.  Disruption, control and coping: responses of and to the person with dementia in hospital.

Authors:  Davina Porock; Philip Clissett; Rowan H Harwood; John R F Gladman
Journal:  Ageing Soc       Date:  2013-09-19

6.  Dementia and Physical Activity (DAPA) - an exercise intervention to improve cognition in people with mild to moderate dementia: study protocol for a randomized controlled trial.

Authors:  Nicky Atherton; Chris Bridle; Deborah Brown; Helen Collins; Sukhdeep Dosanjh; Frances Griffiths; Susie Hennings; Kamran Khan; Ranjit Lall; Samantha Lyle; Rupert McShane; Dipesh Mistry; Vivien Nichols; Stavros Petrou; Bart Sheehan; Anne-Marie Slowther; Margaret Thorogood; Emma Withers; Peter Zeh; Sarah E Lamb
Journal:  Trials       Date:  2016-03-25       Impact factor: 2.279

7.  Embedding patient and public involvement: Managing tacit and explicit expectations.

Authors:  Fiona Poland; Georgina Charlesworth; Phuong Leung; Linda Birt
Journal:  Health Expect       Date:  2019-09-20       Impact factor: 3.377

Review 8.  Measuring safety in older adult care homes: a scoping review of the international literature.

Authors:  Stacey Rand; Nick Smith; Karen Jones; Alan Dargan; Helen Hogan
Journal:  BMJ Open       Date:  2021-03-11       Impact factor: 2.692

9.  Living with dementia with Lewy bodies: an interpretative phenomenological analysis.

Authors:  Victoria Larsson; Axel Holmbom-Larsen; Gustav Torisson; Eva Lena Strandberg; Elisabet Londos
Journal:  BMJ Open       Date:  2019-01-29       Impact factor: 2.692

10.  Symptoms and Well-Being in Older Hospitalized Patients with Cognitive Impairment, As Self-Reported and Reported in Patient Records: A Quantitative Exploratory Subgroup Analysis.

Authors:  Yvonne A Johansson; Catharina Gillsjö; Elisabeth Kenne Sarenmalm
Journal:  Dement Geriatr Cogn Dis Extra       Date:  2021-05-05
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