Literature DB >> 12684903

Influence of knowledge of the disease on metabolic control in phenylketonuria.

Jolita Bekhof1, Francjan J van Spronsen, Matty R Crone, Margreet van Rijn, Carin G M Oudshoorn, Paul H Verkerk.   

Abstract

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Year:  2003        PMID： 12684903     DOI： 10.1007/s00431-003-1197-8

Source DB:  PubMed          Journal:  Eur J Pediatr        ISSN： 0340-6199            Impact factor:   3.183


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  6 in total

1.  Closing the knowledge-behavior gap in health promotion: the mediating role of self-efficacy.

Authors:  R N Rimal
Journal:  Health Commun       Date:  2000

2.  Relationship of parental attitudes and knowledge to treatment adherence in children with PKU.

Authors:  F F Russell; B C Mills; T Zucconi
Journal:  Pediatr Nurs       Date:  1988 Nov-Dec

3.  Impact of a camp experience on phenylalanine levels, knowledge, attitudes, and health beliefs relevant to nutrition management of phenylketonuria in adolescent girls.

Authors:  R H Singh; J A Kable; N V Guerrero; K M Sullivan; L J Elsas
Journal:  J Am Diet Assoc       Date:  2000-07

4.  Psychosocial aspects in phenylketonuria.

Authors:  J Weglage; B Fünders; K Ullrich; A Rupp; E Schmidt
Journal:  Eur J Pediatr       Date:  1996-07       Impact factor: 3.183

5.  Intelligence and professional career in young adults treated early for phenylketonuria.

Authors:  H Schmidt; P Burgard; J Pietz; A Rupp
Journal:  Eur J Pediatr       Date:  1996-07       Impact factor: 3.183

6.  Psychological and social findings in adolescents with phenylketonuria.

Authors:  J Weglage; B Fünders; B Wilken; D Schubert; E Schmidt; P Burgard; K Ullrich
Journal:  Eur J Pediatr       Date:  1992-07       Impact factor: 3.183
  6 in total
  11 in total

1.  Behavioural factors related to metabolic control in patients with phenylketonuria.

Authors:  M R Crone; F J van Spronsen; K Oudshoorn; J Bekhof; G van Rijn; P H Verkerk
Journal:  J Inherit Metab Dis       Date:  2005       Impact factor: 4.982

2.  Demographic and Psychosocial Influences on Treatment Adherence for Children and Adolescents with PKU: A Systematic Review.

Authors:  Emma Medford; Dougal Julian Hare; Anja Wittkowski
Journal:  JIMD Rep       Date:  2017-08-25

Review 3.  The reality of dietary compliance in the management of phenylketonuria.

Authors:  Anita MacDonald; Hulya Gokmen-Ozel; Margreet van Rijn; Peter Burgard
Journal:  J Inherit Metab Dis       Date:  2010-04-07       Impact factor: 4.982

Review 4.  The truth of treating patients with phenylketonuria after childhood: the need for a new guideline.

Authors:  F J van Spronsen; P Burgard
Journal:  J Inherit Metab Dis       Date:  2008-08-12       Impact factor: 4.982

5.  Does maternal knowledge impact blood phenylalanine concentration in Turkish children with phenylketonuria?

Authors:  H Gokmen Ozel; T Kucukkasap; G Koksal; H S Kalkanoglu Sivri; A Dursun; A Tokatli; T Coskun
Journal:  J Inherit Metab Dis       Date:  2008-06-27       Impact factor: 4.982

Review 6.  The complete European guidelines on phenylketonuria: diagnosis and treatment.

Authors:  A M J van Wegberg; A MacDonald; K Ahring; A Bélanger-Quintana; N Blau; A M Bosch; A Burlina; J Campistol; F Feillet; M Giżewska; S C Huijbregts; S Kearney; V Leuzzi; F Maillot; A C Muntau; M van Rijn; F Trefz; J H Walter; F J van Spronsen
Journal:  Orphanet J Rare Dis       Date:  2017-10-12       Impact factor: 4.123

Review 7.  Phenylketonuria.

Authors:  Francjan J van Spronsen; Nenad Blau; Cary Harding; Alberto Burlina; Nicola Longo; Annet M Bosch
Journal:  Nat Rev Dis Primers       Date:  2021-05-20       Impact factor: 52.329

8.  Family social status and dietary adherence of patients with phenylketonuria.

Authors:  Mohammadreza Alaei; Gelareh Asadzadeh-Totonchi; Latif Gachkar; Shirin Farivar
Journal:  Iran J Pediatr       Date:  2011-09       Impact factor: 0.364

9.  Phenylketonuria patients' and their parents' knowledge and attitudes to the daily diet - multi-centre study.

Authors:  Ewa Witalis; Bozena Mikoluc; Radoslaw Motkowski; Jolanta Sawicka-Powierza; Agnieszka Chrobot; Bozena Didycz; Agata Lange; Renata Mozrzymas; Andrzej Milanowski; Maria Nowacka; Mariola Piotrowska-Depta; Hanna Romanowska; Ewa Starostecka; Jolanta Wierzba; Magdalena Skorniewska; Barbara Iwona Wojcicka-Bartlomiejczyk; Maria Gizewska; Halina Car
Journal:  Nutr Metab (Lond)       Date:  2017-08-17       Impact factor: 4.169

10.  What are the information needs of parents caring for a child with Glutaric aciduria type 1?

Authors:  Hilary Piercy; Mildrid Yeo; Sufin Yap; Anthony R Hart
Journal:  BMC Pediatr       Date:  2019-10-13       Impact factor: 2.125
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