Literature DB >> 12643027

Experiencing chronic illness: cocreating new understandings.

Pamela M Ironside1, Martha Scheckel, Constance Wessels, Mary E Bailey, Sharon Powers, Deana K Seeley.   

Abstract

This study was conducted as part of a research course in which new partnerships with area citizens and community-driven programs of research were developed. Working together, the teachers, students, and citizens were able to document their practical knowledge through conducting a study of the lived experiences of chronic illness using Heideggerian hermeneutical phenomenology. The pattern, Experiencing Chronic Illness: Cocreating New Understanding, and three themes emerged during the analysis of the data (a) focusing on functional status doesn't adequately account for the experience of chronic illness, (b) decentering the focus on the treatment of symptoms makes way for equally important discussions of meaning making in the context of chronic illness, and (c) the objectified language of healthcare covers over how chronic illness is experienced.

Mesh:

Year:  2003        PMID: 12643027     DOI: 10.1177/1049732302239597

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  7 in total

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Authors:  Merete Undeland; Kirsti Malterud
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3.  "Sometimes I walk and walk, hoping to get some peace." Dealing with hearing voices and sounds nobody else hears.

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Journal:  Int J Qual Stud Health Well-being       Date:  2014-03-26

4.  'Engage me in taking care of my heart': a grounded theory study on patient-cardiologist relationship in the hospital management of heart failure.

Authors:  Serena Barello; Guendalina Graffigna; Elena Vegni; Mariarosaria Savarese; Federico Lombardi; A Claudio Bosio
Journal:  BMJ Open       Date:  2015-03-16       Impact factor: 2.692

5.  Imagined futures in living with multiple conditions: Positivity, relationality and hopelessness.

Authors:  Lindsay-Ann Coyle; Sarah Atkinson
Journal:  Soc Sci Med       Date:  2017-12-18       Impact factor: 4.634

6.  What matters to people with COPD: outputs from Working Together for Change.

Authors:  Frances Early; Matthew Lettis; Sarah-Jane Winders; Jonathan Fuld
Journal:  NPJ Prim Care Respir Med       Date:  2019-04-12       Impact factor: 2.871

7.  Quality of life assessment in preterm children: physicians' knowledge, attitude, belief, practice--a KABP study.

Authors:  Marie-Ange Einaudi; Catherine Gire; Anderson Loundou; Pierre Le Coz; Pascal Auquier
Journal:  BMC Pediatr       Date:  2013-04-19       Impact factor: 2.125

  7 in total

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