Literature DB >> 12617273

On receiving the diagnosis of multiple sclerosis: managing the transition.

J Johnson1.   

Abstract

This article reports on one aspect of a wider study into multiple sclerosis (MS) specialist nurse roles in the UK. Insights gained from in-depth patient interviews are discussed in relation to literature regarding the meaning of health-related events, such as diagnosis. The findings of this project indicated that for many people, intense feelings of abandonment and isolation were generated at the time of diagnosis and stayed with the person for many months or years. Differing expectations between patient and neurologist following confirmation of diagnosis could contribute to these findings. It is suggested that imparting a diagnosis of MS should be seen as the start of a transition that needs to be made explicit to the patient and closely linked to the provision of sources of information, advice and ongoing support as people learn to live with and manage the disease.

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Year:  2003        PMID: 12617273     DOI: 10.1191/1352458503ms856oa

Source DB:  PubMed          Journal:  Mult Scler        ISSN: 1352-4585            Impact factor:   6.312


  13 in total

1.  Validation of the Comprehensive International Classification of Functioning, Disability, and Health Core Set for multiple sclerosis from the perspective of physicians.

Authors:  Stephanie Berno; Michaela Coenen; Andreas Leib; Alarcos Cieza; Jürg Kesselring
Journal:  J Neurol       Date:  2012-01-24       Impact factor: 4.849

2.  Experience of an information aid for newly diagnosed multiple sclerosis patients: a qualitative study on the SIMS-Trial.

Authors:  Claudia Borreani; Andrea Giordano; Monica Falautano; Alessandra Lugaresi; Vittorio Martinelli; Franco Granella; Carla Tortorella; Imma Plasmati; Marta Radaelli; Deborah Farina; Eleonora Dalla Bella; Elisabetta Bianchi; Nicola Acquarone; Guido Miccinesi; Alessandra Solari
Journal:  Health Expect       Date:  2011-11-01       Impact factor: 3.377

Review 3.  Life issues in multiple sclerosis.

Authors:  Rex D Simmons
Journal:  Nat Rev Neurol       Date:  2010-09-21       Impact factor: 42.937

4.  Quality indicators for multiple sclerosis.

Authors:  Eric M Cheng; Carolyn J Crandall; Christopher T Bever; Barbara Giesser; Jodie K Haselkorn; Ron D Hays; Paul Shekelle; Barbara G Vickrey
Journal:  Mult Scler       Date:  2010-06-18       Impact factor: 6.312

5.  Exploration of transitional life events in individuals with Friedreich ataxia: implications for genetic counseling.

Authors:  V Brook White; Jennifer R Leib; Jennifer M Farmer; Barbara B Biesecker
Journal:  Behav Brain Funct       Date:  2010-10-27       Impact factor: 3.759

6.  Impact of Proactive Case Management by Multiple Sclerosis Specialist Nurses on Use of Unscheduled Care and Emergency Presentation in Multiple Sclerosis: A Case Study.

Authors:  Alison Leary; Debbie Quinn; Amy Bowen
Journal:  Int J MS Care       Date:  2015 Jul-Aug

7.  Identifying Barriers to and Facilitators of Health Service Access Encountered by Individuals with Multiple Sclerosis.

Authors:  Chantel D Mayo; Negar Farzam-Kia; Setareh Ghahari
Journal:  Int J MS Care       Date:  2021-02-23

8.  PICO, PICOS and SPIDER: a comparison study of specificity and sensitivity in three search tools for qualitative systematic reviews.

Authors:  Abigail M Methley; Stephen Campbell; Carolyn Chew-Graham; Rosalind McNally; Sudeh Cheraghi-Sohi
Journal:  BMC Health Serv Res       Date:  2014-11-21       Impact factor: 2.655

9.  'You are just left to get on with it': qualitative study of patient and carer experiences of the transition to secondary progressive multiple sclerosis.

Authors:  F Davies; A Edwards; K Brain; M Edwards; R Jones; R Wallbank; N P Robertson; F Wood
Journal:  BMJ Open       Date:  2015-07-22       Impact factor: 2.692

Review 10.  Experiences of UK health-care services for people with Multiple Sclerosis: a systematic narrative review.

Authors:  Abigail M Methley; Carolyn Chew-Graham; Stephen Campbell; Sudeh Cheraghi-Sohi
Journal:  Health Expect       Date:  2014-07-02       Impact factor: 3.377

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