Literature DB >> 12593865

Disclosure of cancer diagnosis and prognosis in Northern Tanzania.

Julian J Harris1, John Shao, Jeremy Sugarman.   

Abstract

Whether to tell patients with cancer about their diagnoses and prognoses is a matter of great debate. While many argue the importance of giving this information to facilitate informed decision-making, others argue that this same information can extinguish hope. Although there is some evidence that disclosure of this information is now commonplace in many Northern and Western settings, there are very few data about this issue from resource-poor nations describing physicians' decision-making regarding whether to disclose this information. Using a combination of ethnographic and other qualitative methods including participant observation, semi-structured interviews, informal interviews, and a review of key documents in Northern Tanzania, we map some of the salient issues in this setting. Like their colleagues in many other parts of the world, Tanzanian physicians often withhold diagnostic and prognostic information from patients. In addition, however, to the cultural arguments often used to justify this practice, issues of treatment availability and patient poverty also influenced the physicians' disclosure practices. Expatriate and Tanzanian physicians practicing in Northern Tanzania often had different approaches to informing patients of their diagnoses and prognoses. Some Tanzanian physicians advocated the use of a "roundabout" approach to disclosure, arguing that it was more reflective of the normal mode of discourse in Tanzania than the more direct approach advocated by many of their expatriate colleagues. Expatriate physicians and some of their Tanzanian colleagues felt that such an indirect approach often left patients confused, or indeed, uninformed.

Entities:  

Keywords:  Empirical Approach; Professional Patient Relationship

Mesh:

Year:  2003        PMID: 12593865     DOI: 10.1016/s0277-9536(02)00090-4

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  16 in total

1.  Examining the scale and outcomes of global health fellowship programs in the United States.

Authors:  John A Crump; Jeremy Sugarman
Journal:  J Grad Med Educ       Date:  2012-06

2.  Gender and performance of community treatment assistants in Tanzania.

Authors:  Alexander Jenson; Catherine Gracewello; Harran Mkocha; Debra Roter; Beatriz Munoz; Sheila West
Journal:  Int J Qual Health Care       Date:  2014-07-14       Impact factor: 2.038

Review 3.  Truth Telling in the Setting of Cultural Differences and Incurable Pediatric Illness: A Review.

Authors:  Abby R Rosenberg; Helene Starks; Yoram Unguru; Chris Feudtner; Douglas Diekema
Journal:  JAMA Pediatr       Date:  2017-11-01       Impact factor: 16.193

4.  Ways of Hoping: Navigating the Paradox of Hope and Despair in Chronic Pain.

Authors:  Emery R Eaves; Mark Nichter; Cheryl Ritenbaugh
Journal:  Cult Med Psychiatry       Date:  2016-03

5.  Ethical considerations for short-term experiences by trainees in global health.

Authors:  John A Crump; Jeremy Sugarman
Journal:  JAMA       Date:  2008-09-24       Impact factor: 56.272

6.  Diagnosis, disease stage, and distress of Chinese cancer patients.

Authors:  Boyan Huang; Huiping Chen; Yaotiao Deng; Tingwu Yi; Yuqing Wang; Yu Jiang
Journal:  Ann Transl Med       Date:  2016-02

7.  Beliefs About Advanced Cancer Curability in Older Patients, Their Caregivers, and Oncologists.

Authors:  Kah Poh Loh; Supriya G Mohile; Jennifer L Lund; Ronald Epstein; Lianlian Lei; Eva Culakova; Colin McHugh; Megan Wells; Nikesha Gilmore; Mostafa R Mohamed; Charles Kamen; Valerie Aarne; Alison Conlin; James Bearden; Adedayo Onitilo; Marsha Wittink; William Dale; Arti Hurria; Paul Duberstein
Journal:  Oncologist       Date:  2019-04-23

8.  How the doctor's nose has shortened over time; a historical overview of the truth-telling debate in the doctor-patient relationship.

Authors:  Daniel K Sokol
Journal:  J R Soc Med       Date:  2006-12       Impact factor: 18.000

9.  End of life care in sub-Saharan Africa: a systematic review of the qualitative literature.

Authors:  Marjolein Gysels; Christopher Pell; Lianne Straus; Robert Pool
Journal:  BMC Palliat Care       Date:  2011-03-09       Impact factor: 3.234

10.  Health-related quality of life and needs of care and support of adult Tanzanians with cancer: a mixed-methods study.

Authors:  Golden M Masika; Lena Wettergren; Thecla W Kohi; Louise von Essen
Journal:  Health Qual Life Outcomes       Date:  2012-11-02       Impact factor: 3.186

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