Literature DB >> 12556715

Patients with cancer and their close relatives: experiences with treatment, care, and support.

Astrid Steen Isaksen1, Frode Thuen, Berit Hanestad.   

Abstract

This article presents findings from a study of 536 patients with cancer and 473 of their close relatives from 15 different hospitals in Norway. The study assessed the satisfaction of both groups with the help and support they received from different sources such as family and friends, health personnel, and fellow patients. The results indicate that the patients received more support and information than their close relatives. The patients also were generally more satisfied with the support. Furthermore, the relatives seemed to underestimate the help and support provided to the patients. For both the patients and their close relatives, family and friends proved to be important sources of support. Regarding the public health services, almost 90% of the patients were very satisfied with the medical treatment. On the other hand, only an approximate 13% were very satisfied with information about alternative treatment and financial issues related to the disease. For the patients, the contact with fellow patients was highly valued. For most of the patients, this contact provided hope for the future, but it also had the potential for painful and sad feelings. The study was conducted in collaboration with the Norwegian Cancer Society to provide information that can be used for the guidance of health personnel and care of patients and their relatives.

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Year:  2003        PMID: 12556715     DOI: 10.1097/00002820-200302000-00010

Source DB:  PubMed          Journal:  Cancer Nurs        ISSN: 0162-220X            Impact factor:   2.592


  7 in total

1.  Satisfaction with oncology care among patients with advanced cancer and their caregivers.

Authors:  Breffni Hannon; Nadia Swami; Monika K Krzyzanowska; Natasha Leighl; Gary Rodin; Lisa W Le; Camilla Zimmermann
Journal:  Qual Life Res       Date:  2013-02-23       Impact factor: 4.147

2.  Enhancing the experience of carers in the chemotherapy outpatient setting: an exploratory randomised controlled trial to test impact, acceptability and feasibility of a complex intervention co-designed by carers and staff.

Authors:  V Tsianakas; G Robert; A Richardson; R Verity; C Oakley; T Murrells; M Flynn; E Ream
Journal:  Support Care Cancer       Date:  2015-03-06       Impact factor: 3.603

3.  Considerations of culture and social class for families facing cancer: the need for a new model for health promotion and psychosocial intervention.

Authors:  Catherine A Marshall; Linda K Larkey; Melissa A Curran; Karen L Weihs; Terry A Badger; Julie Armin; Francisco García
Journal:  Fam Syst Health       Date:  2011-06       Impact factor: 1.950

Review 4.  Informal caregiving for cancer patients.

Authors:  Francesca Romito; Gil Goldzweig; Claudia Cormio; Mariët Hagedoorn; Barbara L Andersen
Journal:  Cancer       Date:  2013-06-01       Impact factor: 6.860

5.  The meaning and validation of social support networks for close family of persons with advanced cancer.

Authors:  Catarina Sjolander; Gerd Ahlstrom
Journal:  BMC Nurs       Date:  2012-09-17

6.  Towards an understanding of the information and support needs of surgical adolescent idiopathic scoliosis patients: a qualitative analysis.

Authors:  Radha Macculloch; Sandra Donaldson; David Nicholas; Joyce Nyhof-Young; Ross Hetherington; Doina Lupea; James G Wright
Journal:  Scoliosis       Date:  2009-05-08

7.  An exploration of information exchange by adolescents and parents participating in adolescent idiopathic scoliosis online support groups.

Authors:  Traci Schwieger; Shelly Campo; Keli R Steuber; Stuart L Weinstein; Sato Ashida
Journal:  Scoliosis Spinal Disord       Date:  2016-08-11
  7 in total

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